I'm sorry to hear about your diagnosis and the pain you're experiencing and can appreciate why you're feeling overwhelmed and unsure about what to do next.
Managing your pain is crucial for your comfort and well being so you might want to consider discussing pain management strategies with your medical team, such as medications or other therapies that could provide relief. Remember to take things one step at a time, and prioritise your health and well being. With this in mind, there's this page from our website about cancer and pain control I wanted to share with you in case it can be of help.
Hopefully others who have been through a similar situation will come by soon with words of advice and support. Until then if you feel like asking someone with a medical background some questions, feel free to ring our team of nurses. They're available Monday - Friday between 9a.m - 5p.m on this freephone 0808 800 4040.
Wishing you strength and comfort during this challenging time,
My husband has a form of NET too and uses paracetamol on the clock on doctors recommendations. Paracetamol 2 tablets , 3x a day and then please ask your doctor for stronger stuff if you need it. The key is to take the paracetamol on the clock, even if you may not be feeling pain at that time. The doctor explained its background pain control.
Thank you so much. My problem is it’s take 5 months in investigating but have decide what treatment plan they have. MDT meeting is delay twice due to radiologist is unavailable.
I’m sorry to hear that Shahzad, waiting is the worst. But in the meantime, please feel free to push for pain control, call them and ask for painkillers. Plus your GP may also be able to assist. Pain control need not wait for treatment plan. My husband had painkillers paracetamol and Tremadol, while waiting- we were told these don’t interfere with treatment.
