How is everyone doing

Hi,I'm just wondering how people are feeling few years after being diognosed with breast cancer.  I was diognosed in May 2020. Had lumpectomy  and all lymph nodes  removed from under my right arm ,as it had spread to my lymph nodes. Had 8 rounds of chemotherapy, 15 rounds of Radiotherapy.  On Letrazole for 10 yrs. 

I don't know if it's my age I'm 67 now  or becsuse I'm not sleeping well, but my energy levels are zapoed, I'm more fatigued now than I was going through my treatments. Thought I'd be much more like myself before   the cancer hit me.  I also have benn diognosed with Vin 3 of the vulva,which im being monoterd for ...yearly now. Plus i have diverticulitis of the bowel  which has been playing up. And also a recent scan of my abdomen  has shown up a cyst on my liver and also a fatty liver  plus i have gallstones, i was aware i had the gsllstomrs but not the things wtong with my liver Anyone else  feeling the same .I have read that being on   Letrazole  because its a aromatase inhibitor  it can cause problems with the liver . Anyone else on here that's on Letrazole, having any problems with tjhier liver ?.

  • Hi LyndaP,

    Welcome back. I am delighted to hear that you are keeping well. It is good to hear that your energy levels are back up and that you are pleased with your pixie cut. It must be reassuring to have your 6 month scans, to ensure that there is no change in your lung nodules. I am sorry to hear that one has increased slightly since your last scan - here's hoping that there will be no need for any interference at this stage, and that another CT in 6 months will suffice.

    I am glad to hear that you are doing your best to live life post cancer. It is certainly not always easy, but we only get the one shot at life and we have to make the most of it.

    Please keep in touch and let us know the decision of your MDT team. Keeping my fingers crossed that they can leave things as they are for now.

    Kind regards,

    Jolamine xx

  • Thank you I appreciate your reply x

  • Jolamine .Hello again 

    Hope your day's been good we've had some lovely weather today in Essex,but turned a bit chilly again tonight.sorry to read that your energy levels aren't great ,and your liver Haa fubrosed, that's what  scared off. I'm had blood test today to check my liver and blood count,will hopefully speak to gp soon. I'm trying to eat lots more healthier foods, did overnighrt oats,and this morning out in some walnuts Brazil nuts,few strawberries, blueberry and banana, I actualy enjoyed it,don't normaly eat breakfast.  Cut out red meats ( will onky eat red meats occasionally when I. Eating out with friends,eating more vegetables  oh and kiwis  love those. And jazz apples . Whole wheat pasta  rolls and bread,cut putting salt on my food,so I'm trying  hope it helps.Anyway take care Jolamene . Speak soon .xx

  • Hi Jas,

    I tend to be careful with what I eat. I have plenty of fresh fruit and veg, fibre, oats and nuts. I have cut out salt and only occasionally eat red meat now. It is now 14 years since I was first diagnosed and the fibrosis of my liver is still at the same level as it was to start with.

    I hope that your blood test shows that your liver and blood count are not too far off kilter. When do you expect to get the results?

    Regards,

    Jolamine xx

  • Jolamine 

    Hi Jolamine 

    I can't sleep again lol,its 2 27am and I'm in the wide awake  club. Just seen your reply  thank you.

    Yes that's pretty much the same foods I'm eating ,Had a mackerel salad this eve, don't usualy eat smoked  Mackerel ,but enjoyed it. 

    I've been doing overnight oats, and adding walnuts ,Brazil nuts  strawberries  blueberries ,sometimes a bannana, and it's enjoyable and fills me up,which is good. 

    I'm so glad to hear your liver has remained  the same for 14 years e, that's good to knowit hasnt git any worse. 

    Like you I will eat red meats only occasionally,  so hopefully that should help .I've been drinking a bit more water cutting up limes and lemon slices and putting it in my water,find it quite refreshing .

    I'm not sure when the results from my blood test will be back. But the gp has said " she will either call or text me", ,as she's trying to find out the cancer pathway that the rheumatologist told her to follow,when she asked some advice as to if I need to go on medication for my bones,as my go wanted me too,but this doctor I saw wasn't to sure  as my dexter scan came back OK. 

    So I'm not sure if she wants me to do amorher e consult to get an appointment to disscuss evertything  or if she will just call or text me with what she finds out about the cancer pathway and if im to go on this bone medication or not , and also the results from  my blood tests and blood count results. 

    If I don't hear within a week or so,I'll try to call the doctors to find out. 

    Speak soon xxx