How is everyone doing

Hi,I'm just wondering how people are feeling few years after being diognosed with breast cancer.  I was diognosed in May 2020. Had lumpectomy  and all lymph nodes  removed from under my right arm ,as it had spread to my lymph nodes. Had 8 rounds of chemotherapy, 15 rounds of Radiotherapy.  On Letrazole for 10 yrs. 

I don't know if it's my age I'm 67 now  or becsuse I'm not sleeping well, but my energy levels are zapoed, I'm more fatigued now than I was going through my treatments. Thought I'd be much more like myself before   the cancer hit me.  I also have benn diognosed with Vin 3 of the vulva,which im being monoterd for ...yearly now. Plus i have diverticulitis of the bowel  which has been playing up. And also a recent scan of my abdomen  has shown up a cyst on my liver and also a fatty liver  plus i have gallstones, i was aware i had the gsllstomrs but not the things wtong with my liver Anyone else  feeling the same .I have read that being on   Letrazole  because its a aromatase inhibitor  it can cause problems with the liver . Anyone else on here that's on Letrazole, having any problems with tjhier liver ?.

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  • It's lovely to see you back on the forum Jas, although I'm sorry to hear about all the health issues you've been contending with. It sounds like it's been very tough and it's completely understandable why you may be feeling more drained and fatigued than before.

    I'm sure you will hear back from some of our members soon but if you'd like to find out if there if letrozole can cause issues in the liver then do give our cancer nurses a call on 0808 800 4040, Monday - Friday between 9a.m - 5p.m.

    I really hope things start to improve for you soon Jas, but when ever you feel like life is getting you down, just remember that we will always be here for you.

    Kind regards,

    Steph, Cancer Chat Moderator

  • Ahh thanks for the lovely reply Steph,  it's much appreciated.  I have actually googled about my liver problems, and it seems a lot if my treatments have contributed to this. It says  that  chemotherapy, and aromatase inhibitors ( which is whst letrazole is) and low estrogen levels ,which the letrazole reduces,,and radiotherapy can all cause fatty liver and liver problems.  So as I don't eat any sugar ( apart from Whats in my food allready) and eat all low fat  foods,don't drink alcohol  very rarely do I have an acholic drink,I didnt even have one at Christmas lol. So I csnt see it's my diet that's caused it. My gp said to diet as if i am over weight,which I amas dont do as mich as i used to ftom feelimgtiredall the time. ( Another side effect of having a fatty liver) cant win lol, but,I am eating less scince  bring diognosed  to try to help it. I did used to put a lot of salt on ny food, and dont now. 

    I've also read fatty liver can cause pain in your right shoulder and neck, and I've got problems there too,Impingement and inflammation and atheritus I'm my right shoulder, and on my left side my collar bone and my neck have inflammation due to atheritus.  But I just get on with things and still am glad fir every second of every day I have on this earth,life is precious.  I have another blood test  sheduled for April 18th to check on my liver . Also waiting to find out if I'll have to go on medication scince my last dexter scan.  So a lot going on ,but there is always someone worse than you,so my motto is it is whst it is,and you just git to keep on going and enjoying life the  best that you can. Xx

  • Jess 

    vant help with the letrozole I’m on tamoxifen  tired though 

    sending you a hug hope you getting plenty of rest 

    soon summer be here and we be nuzxing about with energy 

    love Lara xx 

  • Hi Jas,

    It's great to hear from you, although I'm sorry to hear of your additional problems.

    I also developed liver problems after taking Letrozole and it has been monitored every 3 months for the past 14 years. I also have pain in my neck and right shoulder. My energy levels have never come back to where they were pre-cancer and I still feel constantly tired. I am now 74, so it is hard to say if this is partly due to my age. I have hypertension too and used to take a lot of salt, but I have cut this down dramatically and seldom drink alcohol.

    As you said, there are always people who are a lot worse off than us and I treasure the dawning of each new day. The one good thing is that my liver hasn't got any worse since it was first detected and I hope that yours doesn't either.

    Kind regards,

    Jolamine xx.

  • Hi Jolamine

    ,Goodmorning  and thank you for your reply.  I just knew in my heart ,that others taking the letrazole,or having had to have chemotherapy would  also be having liver problems, scince I googled it and found out it is listed as one of the health issues when you, have had chemotherapy and are taking Letrazole.  As i don't eat that much sugars and fats. 

    My gp doesn't seem to be very concerned,j, when i asked her whst can i do to help the liver she ust asked me if I'm overweight,and when I said I was,she said dieting will help. I guess it will to some extent,but as ive found out from goggle the real reasons why my liver is now a fatty liber which has a small cyst,whike I have another 7yrs of taking letrazole ,I can't see it improving greatly if at all. 

    My gp hasn't said anything about it needs to be kept an eye on apart from the blood test she wants me to have again  on the 18th Aoril,which isn't long now. 

    You didnt actually say if your liver problems are the same as mine, which is a fatty liver and a small  10mm cyst, or if your liver problems are different to mine.

    Maybe I should say to my gp that I'm concerned about my liver,and woukd feel better if I was checked every 3 mths like you are. It would give me more piece of mind,as I don't want it getting any worse.  

    I know what you mean about  the fatigue scince treatments,as we're getting older, it's hard to know if our energy levels would be better if we didn't have to have been through everything our bodies  have gone through, I do wonder about thst sometimes. I used to have sooo much energy lol.

    It's nice that the clocks have changed and the evenings are getting lighter,and days seem a little brighter weather wise. 

    Hopefuly getting a bit more sunshine each day soon  will help to lift our moods,it usually does mine lol. 

    Anyway was nice to hear from you to jolamine , and again thank you foe still popping on this chat forum  and helping me and others on here. I've chatted to quite a few people scince joining , some requested me as friends,but they don't seem to be on here anymore. 

    But I guess once thier treatments have all been done and dusted  they just don't feel the need to pop on here anymore ,it's a shame but I can understand that,some people want to just get on with thier lives and not think about what they have been through. 

    But me , like you  I'm guessing found this Cancer  chat forum, so helpful, so that is why I like to pop on here from time to time,and I do reach out and help ifi can  , like I kniw you still do. I've always been empathetic, and really like to help people who are going through simular health issues. 

    Thanks Jolean x.

  • Hi Lara

    Thank you for your reply.  Yes I am loving the lighter evenings now the clocks have changed,and yes looking forward to brighter summer days,always lifts the spirits ,well it does mine lol. X

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