Its not me

Hi, I am new to this forum, or any other, and I hope I am in the right place to share my position and hopefully receive some guidance.  My husband had cancer 5 years ago, it was rare for men and he then received the news that he had BRCA 2 gene which sadly has been passed onto our two children. 

My husband completed his treatment and as of today, all is well. However, living with BRCA 2 is literally frying his brain.  I feel so detached from him as any news about cancer sends him deeper into his hole he has dug.  He knows he 'dodged' the first round but he is now waiting for the train to come down the line second time round and is literally living in wait (his words).  One of our children took the bull by the horns and had a preventative double mastectomy, the other is keeping very quiet at the moment. This is not something I feel I can talk to him about as he will adopt the failure personna, which I know I need to avoid.

Like everyone, we all know someone else who has or has had cancer and sadly this week cancer is responsible for a close friend undergoing surgery for the second time, my brother in law passing away and now my brother has been diagnosed. Whilst he gave me a hug when I told him about my brother he disappeared upstairs to deal with it.  I know him well enough so know that he compartmentalising it, but meanwhile he had left me. After that there was no comfort.

I feel like I am being selfish but I am so angry. I want to scream at him. He no longer has cancer but its almost like he is living his life according to it. Don't get me wrong, he has a very positive outward image and not many people see this side of him (although he did say to my best friend that would be dead soon because BRCA would get him).

This is causing no end of damage to our relationship and I would welcome any guidance on what I need to do or not do.

  • That sounds like a lot. Wow. All I could add is to be sure of speaking to a therapist about it all. I’ve had counselling for since last year and it’s been invaluable. Wishing you all the best and hope for the future 

  • Thanks for your reply TImboat. There is a lot going on and I guess with my brothers diagnosis, I am almost seeing my husband in a different light now. My husband has received therapy, but it's almost made it worse for us as he honestly does not realise the effect he is having on those around him, therefore probably isn't relaying it. Our son, who he was really close to, literally moved away and stopped seeing him because of who he had become.  I am trying to contact our local unit for some therapy for me so fingers crossed! Thanks again and glad to hear your counselling has helped.