PET scan for tonsil cancer

Has anyone who has gone through treatment for HPV related tonsil cancer had a CT scan and then been sent for a PET scan? We were told from day one this may be the case and around 50% of people do get this but I am absolutely terrified that this is the case and another wait!! We had the brilliant news that the CT scan showed no cancer but that they want to do a PET scan to double check it’s just scar tissue on the lymph node. Has anyone else had this? 

  • Welcome to the forum VAt377 although I'm sorry for the stress and anxiety this is causing.

    Hopefully some of our members who have had HPV related tonsil cancer will be along soon to share their experiences and advice but if you'd like to discuss this further with one of our cancer nurses, you can do so on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They're very easy to talk to and will do all they can to answer your questions and put your mind at ease whilst you wait.

    We're thinking of you VAt377 and will have our fingers crossed the PET scan will confirm the good news you have already received from the CT scan.

    Kind regards,

    Steph, Cancer Chat Moderator