23 minutes

Hi all

I was diagnosed with stage 2 Hers 2 Negative breast cancer on July 17th 2023.

I've called my journey so far 23 minutes because that's all the time I've been given. I've had no support from "Health Professionals" and I've so many questions to ask still.

I saw two Oncologists and was rushed out after 6 minutes.  Two weeks ago the lump under my arm has come back only this time its twice the size .. I called the Cancer unit and left 2 messages also my best friend called up and I've still heard nothing back. 

I am very upset so I apologise for venting but I've held all this in for the last 8 months. 

All ive was told is that I'll be on a pill 5 years, then it changed to 10 years and now it's life.

I've got Moderate sleep apnea and unless I'm having treatment for the sleep apnea I can't have a LUMPECTOMY.  So I asked if I could have radiation I was just told they will see down the line?

But if I had of been able to have a LUMPECTOMY they also wanted to take out 2-3 LYMPH NODES..  but I said if it hasn't gone to my lymph nodes why take that many out, right? The surgeon said incase they missed the margin.

I was put on Letrazole to begin with and couldn't get on with it at all, I felt sick and was sick so they changed me to Anastrazole that was the same. So they took me off the pills for 3 weeks then put me on Exercade .. with this pill I'm experiencing pains in my legs and headaches.. and I've heard nothing else.

Like I say I've so many un answered estions and it's effecting my mental health. 

I honestly in a million years never thought I'd be treated like i just had a common cold .. its disgusting really.

I'm registered disabled and even trying to get help undressing and getting on to the bed at the scan appointment was neon impossible. They just didn't want to help me, I just felt like an inconvenience to them.

Has anyone here had the same kind of treatment? I really hope not. I feel so lonely and iisolated.im completely miserable.  I've zero energy to do anything.  Doctors won't listen to me , I'm so fed up with it all tbh. 

Sorry again for ranting !! 

But on a positive note my beautiful boy Hunter ( my 5 yr old German Shepherd) found the lump. I've seen it on TV but it's one that leaves you thinking "wouldn't that be amazing " but I was never 100 I owe my puppy my life.. he was so persistent,  I even told him off love him and felt so guilty  afterwards ..  I love my fur baby more than anything  

  • Hi ya so sorry to read your story. Can't begin to imagine how you are feeling. Don't be sorry for ranting. This is the place to let it out. Bless you

  • The NHS is overwhelmed with the amount of seriously sick people that its probably all the time they could spare ,a few years ago I doubt your experience would have been that bad ,covid changed everything I have no doubts there ,but everyone deserves empathy and kindness and patience ,I recently had to have pain killing injections into my neck in the Hospital I couldn't believe the speed in which it was done, less than 10 mins in and out ,I hope you're doing ok and things go well for you ,animals are amazing always true and faithful and have time for you x