Chemotherapy - cold cap

I everyone hope everyone doing as well as they can be.

ive had my first lot of chemo with the cooling cap second round due Friday but yesterday i noticed my hair starting to fall out so now I’m wondering weather to have the cooling cap again, has anyone been in the same situation ? And what did you do ? 
thanks Emma x

Parents
  • It's important to make sure they give you the right size cap. Some nurses don't seem to know how to do the cold cap. I had it for both my chemos. You need to have the cap on for 30 minutes before the first drug starts. I had carboplatin & pacitaxel, I'm not sure I've spelt that correctly. The cap has to stay on for the whole of the 2 drugs & for 90 minutes after treatment. The first 20 minutes is quite painful but then it's fine. I lost some hair but kept most of it both times. It was thinner but so much better than losing all my hair. I'm happy I persevered. I had one nurse wanting to use a large cap on me. I let her the first time but I felt it wasn't right & I had some hair come out round the edges because the cap wasn't on tight enough. It was fine when I went back to the medium cap. Good luck with everything. It's a personal choice. Take care.  Sue 

Reply
  • It's important to make sure they give you the right size cap. Some nurses don't seem to know how to do the cold cap. I had it for both my chemos. You need to have the cap on for 30 minutes before the first drug starts. I had carboplatin & pacitaxel, I'm not sure I've spelt that correctly. The cap has to stay on for the whole of the 2 drugs & for 90 minutes after treatment. The first 20 minutes is quite painful but then it's fine. I lost some hair but kept most of it both times. It was thinner but so much better than losing all my hair. I'm happy I persevered. I had one nurse wanting to use a large cap on me. I let her the first time but I felt it wasn't right & I had some hair come out round the edges because the cap wasn't on tight enough. It was fine when I went back to the medium cap. Good luck with everything. It's a personal choice. Take care.  Sue 

Children
  • Hi Sue. So pleased the cap is working for you. I am also on Carboplatin and Paclitaxil but have been told I can not have the cold cap as my session was to last longer than you can keep the cap on. I’ve had 1 session and after 11 days I’m losing quite a lot of hair. I do have a wig and bandana ready for the time. Trying to stay positive. I wish you all the very best and good luck xx