Oesophageal Cancer

Hi ,my name is John,11 years ago I was diagnosed with EC,stage 3 lymph nodes affected,14 ,had 3 rounds of cisplatin then Ivor Lewis surgery,followed by another 3 rounds of cisplatin plus chemo tablets daily .Ive recently had issues with diverticulitis possibly caused by taking painkillers long term.Has anyone else had this ? I'm fine apart from the odd bouts of dumping and reflux, but I still lead a near Normal life and always stay positive.

  • Welcome to our forum, John and thank you for sharing your story with us.

    It sounds like you've been through a lot but are maintaining a positive outlook, it's great to hear that despite these challenges you're leading a near normal life and staying positive. 

    While I can't offer medical advice, I can say that it's not uncommon for individuals who have undergone extensive treatments like chemotherapy and surgery to experience other health issues down the line. If you're experiencing symptoms like dumping and reflux, it might be helpful to discuss them with your healthcare provider to explore management options.

    Hopefully, other forum members who have had a similar experience will come in shortly to talk with you and offer some insight and advice. Until then, if you think that it could be helpful to ask some questions to one of our nurses, please know that the team can be reached on this number 0808 800 4040 Monday - Friday between 9a.m - 5p.m. 

    Keep taking care of yourself, and know that you're not alone in this.

    With best wishes,

    Renata, Cancer Chat Moderator

  • Hi,

    Not exactly the same, but I was diagnosed with OC at stage 4 in 2013. 
    I’m having a CT scan every year to check whether or not it’s returned. 
    Are you still on the daily chemo tablets, or did you stop those?
    It all feels a bit surreal, doesn’t it? 
    My consultant reckons that the longer someone is in remission, the more likely they’ll be a long term survivor.

    Good luck!
    Dave

  • Offline in reply to davek

    Hi Dave mate ,my chemo stopped after my surgery and last chemo ,it's been 11 years now mate ,and it took me about 3 years to get my head around and start feeling positive, because as you know it messes with your head ,all the anxieties that no one close to you understands,it's hard mate but you are your own statistic,the internet is the worse thing you can look at as it's so outdated..I'm living my life to the max now , enjoying every day and going on holidays I won't be beaten by this horrible disease,and I'm going to enjoy my life my  mate ...

  • Offline in reply to Johnhp

    That’s brilliant John! 
    “Messes” is a polite way of putting it! 
    I’d even had a send off party and compiled a play list for my wake! 
    In 2013 I was told statistically only 3% diagnosed with OC at stage 4 would survive for 5 years. I was repeatedly reminded by oncologists that my chemo was palliative, not curative and I shouldn’t get my hopes up! 
    Cheers
    Dave