Hi everyone. I'm in a bit of a shock! Just over 7 yrs ago, I was diagnosed with inflammatory breast cancer. I done Fec-t and mastectomy and just before radiotherapy it spread to my scarline. The hope was that the radiotherapy would mop it up, but it didn't. And 6 weeks after was started on Kadcyla, one of the first patients to be on this drug as it had just been licensed. I've been on Kadcyla for just over 6 yrs now and NED with treatment. Stage 4 on palliative care treatment. 

3 yr ago, I had sepsis due to a wrongly diagnosed cellulitis. After this my breathing started to get worse. I've seen lung doctor, who had no idea, heart specialist who said I had a shunt, and after a bubble contrast scan, turns out it I have a condition called hepatapulmonary disease, a form of chirrosis. The only cure being oxygen therapy which I already use and transplant. But after first meeting with specialist was told because of cancer diagnosis have little or no chance of getting.

Last week I had oncologist appointment, and because my treatment had been on hold, thought she would say just to go back on treatment and see how things go.  But I was shocked to be told that treatment is stopping to see if I still have cancer or not! If cancer doesn't come back, I'll be eligible for transplant next year if it comes back, I'll be able to go back on treatment but it will have to be a different treatment.

I'm now totally scared! Ive gone from one day bring stage 4 palliative care patient to not knowing if I have cancer or not. I will have scan in 6 months and appointment in 3 months. My oncologist is always on end of phone and I know I can be seen at short notice if needed. Bit that doesn't stop the fear of no safety blanket on the form of the Kadcyla!

I'm so sorry for the long post, but everyone thinks it's great news and don't understand why I'm so scared and confused and feel like I can't talk to anyone without being told to stay positive which is so hard to do only a week after being told.

Thank you for reading my story and rant, and if it is cured I hope it will be hope for other ladies on targeted therapies xxx