Hi I'm so sorry to read this, you must be feeling devastated, I have looked up this type of chemotherapy and it reads pretty well, I personally haven't had this treatment as my last one's were in 2019 and 2012 prior to that, sending hope and praying this helps you in your fight xx
I am so sorry to hear about the spread of your cancer and can understand how you feel.
Enhertu has been used in America for some time, with good results. It has only recently been approved for use in the UK and I sincerely hope that it works well for you.
Please keep in touch and let us know how you get on. We are always here for you.
im so sorry to hear about the spread of your cancer, it must be very challenging. if it helps at all I’ve been on Enhertu since last November 2023 with excellent results. My breast cancer which had spread to my right lung with multiple tumours found, after only four treatment's of Enhertu has now put my cancer in remission. However, personally I’ve found Enhertu quite tough going, but that’s me. You might be more tolerable of it. It just seems the side effects with this targeted chemotherapy are more challenging than any of the other chemotherapy’s I’ve tried., and I’ve done FEC & Paclitaxol. I’ve also had stereotactic radiotherapy, so if you want to ask me any questions I’m happy to share.
I am delighted to hear that Enhertu has put your cancer into remission so quickly. Can you tell us what difference you found with the side-effects of this, as opposed to your chemo?
I have found the side effects from Enhertu to be quite exhausting as I said. I’ve been neutropenic twice so far and had to have injections to boost my immune system. Despite wearing a cold cap I’m finding my hair is thinning quite badly. I’ve had mouth ulcers constantly, the nausea even with taking strong antiemetics is constant for me for almost a week and half post treatment. The loss of taste is quite annoying as well and lasts even longer. But I think the worse side effect for me personally is the weakness, I seem to sleep for a good three days post treatment and once I stop taking the steroids. Then I just feel physically and mentally exhausted for a good week after the sleeping . All in all I’m weighing up the cost of this treatment in terms of my health versus the quality of life it is giving me as I feel being ill for two weeks out of three a high price to pay. For me I’ve got to be on this treatment until it stops working, so you can see my dilemma. I have a chat with my oncologist on Tuesday so hopefully we can come up with a solution before my treatment on Friday. Fingers crossed.
I truly hope I haven’t put anyone off this drug as it has put me into remission quickly for which I’m truly grateful. The side effects I have experienced are personal to me and my biology someone else may not be so compromised. I am also nearly sixty and not as strong as I was when I first had chemotherapy nearly thirteen years ago. I’ve also been on Phesgo for nearly eight years and had several operations, so all in all my body has been through allot. I hope this insight to my personal experience of Enhertu is helpful.
I am sorry to hear that you have had such a nasty reaction to Enhertu. I asked you this question because there have been a few enquiries on the forum in the past few week's about the side-effects. As with any new drug, it is difficult to find reports on it, until it is more widely used in the UK
Whether or not you continue with this has to be totally your decision and it will be worth discussing this with your oncologist on Tuesday. Whatever you decide, I sincerely hope that you make the right decision for you.
Please keep in touch and let us know how you fare on Tuesday. We are always here for you.
