Diagnosed with retroperitoneal leiomyosarcoma (rLMS) in 2016. Had suffered debilitating pain for 2 years previous. Had so many tests, saw so many specialists, given so many diagnosis (from ibs to menopause and even told it was psychosomatic!).
Have since had 2 recurrences, 2 lung mets, lost a kidney and had 28 sessions of palliative radiotherapy after being told there was nothing that could be done in 2018. Been NED 5 times! I am scanned every 3 months (since 2016). Awaiting results of the latest scan tomorrow (25 Jan).
Always scared, always hopeful.
Just saying hello really x