New here not to cancer though!

Diagnosed with retroperitoneal leiomyosarcoma (rLMS) in 2016. Had suffered debilitating pain for 2 years previous. Had so many tests, saw so many specialists, given so many diagnosis (from ibs to menopause and even told it was psychosomatic!).

Have since had 2 recurrences, 2 lung mets, lost a kidney and had 28 sessions of palliative radiotherapy after being told there was nothing that could be done in 2018. Been NED 5 times! I am scanned every 3 months (since 2016). Awaiting results of the latest scan tomorrow (25 Jan).

Always scared, always hopeful.

Just saying hello really x

  • Hello

    i know that feeling of awaiting test results. I do hope the news is positive for you tomorrow . Do post how you get on.

    Your journey is a long tough one and sounds complicated at the start with numerous diagnosis. I am only learning about various forms of cancer as initially I didn’t want too much information. I am now more reconciled to the fact. My prognosis isn’t brilliant but the magic pills are! For now anyway. I have been fortunate to have few side effects and can lead a ‘normal’ ish life. 

    I have been told my body is responding or at least the little B….are not increasing. I have brain metastasis which isn’t good but even that is shrinking. 
    My family have been great & so supportive. I have 3 children (no they’re adults!) & 4 grandchildren, bless them.
    I also just wanted to say hi  

    & send you some love  

    Jane

  • Hi,sending love and prayers for positive news ,and saying hi to you,you’ll be in my thoughts  and hoping you will be posting positive news.Big hugs x