Anyone on this
I’ve had low white blood count and neutrophils, they reduced my dosage and that’s now stable at just enough for me to keep the treatment. I have secondary in my lungs (from Breast)
Hi I was on fasoldex plus ribociclib which was too harsh soon going on to pabbociclib but only prepared to take one tablet as to what happened to me last time ! Are unon fasoldex also or another tablet , how long have you been on it ? How many scans ? Thanks I’ve had one scan so far
I started out on Ribociclib but ended up in hospital after 1 month (lightweight or what lol) so oncologist changed me to Palbociclib. I’ve had one scan so far and cancer was stable. I have Letrozole and Palbociclib. This is my fourth cycle and apart from breathing issues I’ve been okay.
Are you doing okay?
Hi thanks re reply . I was very bad on ribociclub almost liver failure :( . Have had 6 fasoldex injections . They want to put me on palbociclib but tad scared . Had one scan since all stable .
I also have modules on
lungs
How bad re breathing issues ? Thanks
Nodules and fluid on lungs so breathing is poor, I have oxygen therapy too. 1 flight of stairs and I have to sit to get my breath back. For getting around town etc I have a mobility scooter. The oncologist wants to drain the fluid to help so will await whether this can be done. I have cancer in the fluid so they remain tentative.
Don’t be scared about Palbociclib it seems a lot milder than Ribociclib. You’ll be fine. You still working or have you packed in now?
Wow poor u . Yes when I can I go to oxegen chamber . Has it affected your sight ?
Wow poor u . Yes when I can I go to oxegen chamber . Has it affected your sight ?
Just dry eyes but they gave me drops which help a lot.
It’s a lot to take on isn’t it x
Yes tough some days :( I was 6 yrs clear :( had another lump removed then lung nodules . Sometimes feel like stopping the drugs and just living. All best
Pa what are the eye drops called ? Thanks