Hi everyone, I’m new here.

in May 2023 I felt a lump in my left breast, which was eventually diagnosed following scans and biopsies as 3cm G2 IDC PR8 ER8 Ki67 20%. One other type of breast cancer was also present (papillary something).

In the month run up to my lumpectomy and SNB I came off HRT and sugar.

I was surprised that the results of my post lumpectomy biopsy was 1.8mm G1 IDC Ki67 5-20%. No trace of the second bc. This changed the course of my treatment meaning I went straight to partial breast radiotherapy, no chemo.

In September I had a scheduled transvaginal ultrasound, which showed a thickened endometrium.  This led to my ovaries and tubes being removed for risk reduction during a second biopsy of my endometrium in November 2023.

The endometrium biopsies came back clear, as did the biopsy of my ovaries and tubes.  BUT…something called a peritoneal washing was done during the surgery and the biopsy of that showed “degenerate cells suspicious for malignancy”. They also have oestrogen receptors.

Since then I have been batted back and forth between the gynae and breast teams, both claiming it can’t be related to their specialty.  

I understand this is pretty rare.  Is there ANYONE out there with anything similar? Can anyone advise which scans and tests I need?  

I have a CT scan booked for Monday but the gynae consultant agreed it would only show larger tumours, which could leave me in a watch and wait situation until a tumour can be detected, biopsied and then treated.  The prospect of this is terrifying- I am a single parent to a 10 year old who has already lost her father from her life.  

The only positive thing I can find is that I’m on letrazole now ano that can only be of benefit.

I’d love to hear from anyone who’s had or heard of similar.

THank you