* ULTIMATE FAILURE * (an unfamiliar surgeon told me I was cancer free when the reality is that my body has NOT respond to chemotherapy or radiotherapy)

My only chance of survival now is to have my complete rectum removed and a permanent colostomy & stoma in situ for the rest of my life due to the incompetence of others.

THREE YEARS it took for individuals to actually diagnose my anal squamous cell carcinoma(*neg to HPV) after various inadequate procedures were not carried out properly. Markers present in my blood but ignored by the individual reading the results and my subsequently being told over the phone by a receptionist that the blood results “were fine” !!!

To say my late Father(who suffered & died from stage 4 Caecal cell Carcinoma due to failed diagnosis for years by a different GP & other medical professionals is beyond comprehension)

To say we have been failed tremendously is an absolute understatement and it’s so hard to not feel anger, disappointment and complete blame. 

I wish the medical profession(which I gave 20yrs dedicated service)would really comprehend and appreciate the value of every individual as a person and not simply see us as a number or part of a “case load” on their desk!

I feel so deflated, hurt & completely exhausted from the catalogue of errors that I have become so despondent and untrusting of the individuals I need to be trusting, however I don’t know who’s hands I am safe anymore and that is a scary prospect when you are about to go under the knife for a completely life altering surgery.

Needed to vent, thank you for taking the time to read about the hard time my family & I have endured since my rectal bleeding began in September 2019. Stage2 Malignant ASCC not diagnosed till 23rd January 2023! By which point it had the opportunity to spread deep within the anal muscle, which is why the whole rectum now needs to be removed.

Its just all so very sad & I don’t even have my Dad here to support me because he was dead within 6 weeks of his diagnosis and now my elderly Mother has to watch her only daughter go through the same gruelling existence. She worries about me & I worry the stress is going to be too much for her by the time I have any sort of quality of life again.

Sorry time to stop, needed to get all that off my chest.

Thank you for your support, it means a lot.

S x