Brentuximab

Has anyone undergone treatment using this IV drug?   To start next week in treatment of my Sezary syndrome.   Really like to hear of others experience on it. 

Parents
  • Hello NormanS, 

    Best of luck with your treatment this week - I hope that it all goes well for you. Information on Brentuximab can be found on our website on this page. I hope that you will hear from the experiences of others who have had the same treatment. I had a little look around the forum and found this thread by   who posted a few months ago and was about to also have Brentuximab. Feel free to respond to that thread if you wish. I hope that you can exchange notes and tips based on your personal experiences. 

    Best wishes, 

    Lucie, Cancer Chat Moderator

Reply
  • Hello NormanS, 

    Best of luck with your treatment this week - I hope that it all goes well for you. Information on Brentuximab can be found on our website on this page. I hope that you will hear from the experiences of others who have had the same treatment. I had a little look around the forum and found this thread by   who posted a few months ago and was about to also have Brentuximab. Feel free to respond to that thread if you wish. I hope that you can exchange notes and tips based on your personal experiences. 

    Best wishes, 

    Lucie, Cancer Chat Moderator

Children
  • Lucie,  I have not received a response from AbeyMaxon on my inquiry.  She says to message her and K don’t know how to do that. 

    Had my first infusion a week & 1/2 ago.  The day following, thought I was experiencing a miracle, the day following that it was back to reality.   Does appear to be showing results, the itchiness is letting up.