Has anyone undergone treatment using this IV drug? To start next week in treatment of my Sezary syndrome. Really like to hear of others experience on it.
Has anyone undergone treatment using this IV drug? To start next week in treatment of my Sezary syndrome. Really like to hear of others experience on it.
Hello NormanS,
Best of luck with your treatment this week - I hope that it all goes well for you. Information on Brentuximab can be found on our website on this page. I hope that you will hear from the experiences of others who have had the same treatment. I had a little look around the forum and found this thread by AbbyMax2000 who posted a few months ago and was about to also have Brentuximab. Feel free to respond to that thread if you wish. I hope that you can exchange notes and tips based on your personal experiences.
Best wishes,
Lucie, Cancer Chat Moderator
Hello NormanS,
Best of luck with your treatment this week - I hope that it all goes well for you. Information on Brentuximab can be found on our website on this page. I hope that you will hear from the experiences of others who have had the same treatment. I had a little look around the forum and found this thread by AbbyMax2000 who posted a few months ago and was about to also have Brentuximab. Feel free to respond to that thread if you wish. I hope that you can exchange notes and tips based on your personal experiences.
Best wishes,
Lucie, Cancer Chat Moderator
Lucie, I have not received a response from AbeyMaxon on my inquiry. She says to message her and K don’t know how to do that.
Had my first infusion a week & 1/2 ago. The day following, thought I was experiencing a miracle, the day following that it was back to reality. Does appear to be showing results, the itchiness is letting up.