Invasive lobular carcinoma ER8 PR8 HER2 negative stage 4

Hi everyone 

I was diagnosed 6 weeks ago with invasive lobular carcinoma ER8/PR8 HER 2 negative with meds to spine in 5locations and both hips, the primary cancer is in the left breast one 1.1cm and the second is 0.5 cm

started the letrozole 2.5mg nearly 4 weeks ago and also 3 days ago I started the ribociclub 3 tablets a day

Any advise as I am new to the forum

Thank you

  • Hi MHope, I'm sorry to hear about your diagnosis. I had invasive ductal carcinoma and don't know too much about lobular. Is there anything in particular you needed advice about? The one thing I can suggest is that you try to stay as active as possible and eat healthily, cut out/down alcohol consumption, etc. I'm sure other women with lobular BC will see your post and respond in time. Take care for now, Amy xx

  • Hi Amy

    Hope you are keeping well and big thank you for your response.

    My cancer due it's spread to bones I can only have as a first line oral treatment.

    I was hoping to find more information about the treatment success in prolonging life and how well people are tolerating it.

    All the best to you!

    xxx