Living with Stage 4 Cancer

Hi

My husband was diagnosed with stage 4 bowel cancer in January. It’s been a heck of a few months (as I’m sure you will have experience of) to get to prognosis. 

He had his 4cm primary tumour removed from his bowel on 1st March and is due to start 4 cycles of chemo this month (Capox - combination of IV and tablets) then time to recover and a liver resection. 
 

The biopsy showed that 6 out of the 14 lymph nodes removed showed cancer (1 apical node), VI also impacted. RO - so clear margins and we’re told all cancer removed from bowel. The pathology report mentions 1 satellite tumour deposit too, which I don’t really understand- if they are saying clear margins did they get that too, and is a tumour deposit a worse outlook? He has 2 small spots on his liver, 6mm and 8mm and both currently operable. They are going for cure! 


I was absolutely relieved when they said cure. However, given all the bits impacted that I mention above I constantly worry something else is going to show up!  Particularly worried about this apical node and tumour deposit, which I still don’t really understand much about, or it’s impact! I keep thinking that there might be other things lurking we don’t know about yet. Spread we can’t yet see but then there might not be! Or if there is the chemo gets it before it has a chance to grow further! 
 

I want to believe that he will be cured and by the end of the year we can put this all behind us. For context I’m 6.5 months pregnant and finding it hard to picture the future and what that might look like. I want us to be a family and for my son to know his Daddy. No one has told me right now that won’t happen and I’m wasting time worrying about it instead of enjoying each day with my husband and my pregnancy. 
 

Any positive stories from a similar diagnosis or advise on coping mechanisms would be gratefully received. I don’t want to worry anymore it doesn’t achieve anything! I’m trying really hard! 
 

Thankyou ! 

  • Hello Lexi9

    I'm so sorry to hear that you're struggling at the moment. Undoubtedly between your husband's diagnosis and your pregnancy you're juggling a lot at the moment and it's understandable that you have questions, concerns, doubts and worries. 

    I can see that you've previously chatted with [@gruntifen]‍ aka Dave on another thread and that he's shared his story of diagnosis and treatment. Try to keep hold of the positive stories Lexi. As you've said, at this point the team caring for your husband are talking about a cure. Keep hold of this positive news and when those doubts try to creep in then go back to that point. 

    I don't know if your husband has a clinical nurse specialist but if he does then don't forget that they are there to support you as well if they can. It may be that by chatting through some of your concerns with them they are able to give you some reassurance. 

    You are dealing with a lot at the moment and over the coming weeks and months as your husband starts the next phase of his treatment and you get closer to the baby arriving I'd really encourage you to reach out and accept any support that you can. If there is a Maggie's local to you then get in touch with them. There is always a listening ear and a cuppa available for you there. 

    If you want to chat things through with one of our nurses you're welcome to call them on 0808 800 4040, Monday to Friday 9 am to 5 pm excluding bank holidays. 

    Keep in touch Lexi. We'll do our best to support you. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

  • Thanks for your message. Yes I have spoken to David a lot and he has massively helped me. I am so happy to read his story and know all is well. 

    I suppose my concern is given the lymph node, blood vessel involvement and tumour deposit, it's worrying their is other things lurking that we don't know about. However, there might not be and I know focusing on the positives is the best thing to do. I was looking to see if anyone else had similar involvement or could tell me a bit more about them.

    I plan to go see Maggie's as you are right I think they will be a great help and I will speak with the nurse too. I'm determined to keep positive!

    To look at my husband you'd never even know he is sick or going through such a time of it! He is so strong and pragmatic - a complete inspiration! So strong! 
     

    Thanks again. 

  • Hi Lexi9, I think you started posting on this forum around the same time I did and I just wanted to say what encouraging news that the consultants are aiming to cure your husband's cancer. All the best with the rest of your pregnancy and I hope you're getting to enjoy time with your husband in between appointments xx