Emotional effects of treatment (TW)

I don't want to trigger anyone or put anyone off having treatment that would help them so please remove if this is inappropriate.

Has anyone else been left feeling suicidal by the effects of treatment on their body? For the small percentage it has improved my chances of not getting a recurrence it doesn't feel worth it, as I feel like my chances of dying by suicide have increased by 100% and I will be just as dead. In fact I now hope to get a recurrence so people around me won't have to cope with my death being a suicide.

Sorry I don't want to drag anyone down who is on this forum to look for or offer hope and support, I am just struggling a lot today and have been self harming the part of my body affected by the cancer (not severely at all though). I kind of hope no one else feels this way but I am also so lonely.

  • I feel pretty suicidal from time to time. I hate taking tablets and particularly the calcium and vitamin D tablets they are prescribing along with letrozole to counteract osteoporosis which could increase the chance of cancer in my bones. I was very annoyed with getting breast cancer again in the same breast as last time as that meant I had to have a mastectomy because you can't have radiotherapy twice in the same area. So I changed hospitals so I could have an immediate reconstruction. It looks nothing like my other one, but it's used part of my tum to make a fake breast without a nipple.

    I have thoughts of suicide. I try to keep these to a minimum by making a list and by reading the papers. My Saturday paper takes me all week to get through as I am now distracted by all sorts of other activities. My husband is looking after me and gets fed up with my negative thinking from time to time so that keeps me going too, feeling fed up at my lot!

    AuntieJ

  • Sorry you are feeling so low too [@AuntieJ]‍ . Sounds like you have so much going on. I can relate to being fed up of tablets - then I feel guilty for not being grateful enough for them and guilty because I forget to take them so often. I think distration can sometimes be the best way through. Don't know what to say but I hear you and wish you better times.

  • Hello AuntieJ, 

    I am so sorry to hear you are feeling so low at times and that you have been having these suicidal thoughts. Perhaps it would be a good idea to talk to your GP about these thoughts and your doctor will I am sure have some helpful advice and suggestions for you. It seems like you are doing a great job at controlling these thoughts keeping busy, reading the paper to try and keep these at bay. I am glad your husband is also looking after you and is helping you keep positive. But it may be good to get extra help and support by talking to your GP about how you have been feeling at times. 

    As my colleague Jenn suggested in an earlier post on this thread, if you ever feel that these dark thoughts are getting a bit much, don't hesitate to call Samaritans, who are available 24/7 on this free number 116 123.

    I am glad you have met Crow_ here as it sounds like you understand each other and can support one another during these tough moments. 

    Best wishes, 

    Lucie, Cancer Chat Moderator

  • Thank you for thinking of me. My husband suggested I felt the way I do because I am depressed. I am expecting various phone calls from counselling services soon. I feel worst early in the mornings as I can't see the point of going on. All the treatments have side effects and I put off getting my symptoms looked at because I'd already had breast cancer once and I couldn't face having more treatment which I knew would be a mastectomy. Last year I had breast reconstruction once I did get diagnosed, butI now I have been prescribed 5 years of letrozole which reduces oestrogen.

    I like oestrogen, it's essential to being a woman. I feel I have been defeminised, and that I might as well go. That and ending up with osteoporosis. And a dodgy jaw because of zeledronic acid. You are going to die at some point anyway when you get to 67. I wouldn't advise anyone else to contemplate suicide. But for years I have been thinking of a one way trip to Zurich.It may not be for everyone, but it will allow my relatives or charities to get more money. Otherwise at some point it will all go in nursing home fees.

    AuntieJ

  • Hello again AuntieJ, 

    Your husband may be right - after everything you've been through it wouldn't be surprising if you were a bit depressed. I would suggest you talk to your GP about how you are feeling and also take this opportunity to mention the side effects from Letrozole which may be affecting you and how you feel, the fact that it reduces oestrogen. It may be that with a little tweaking of your meds, things will improve for you so it's definitely worth having this conversation with your doctor or specialist.

    Keep strong AuntieJ and do take these important steps to feel better like talking to these counselling services or your GP. You mentioned you feel worst first thing in the morning so perhaps you could start the day trying to break the pattern of these dark thoughts occurring by doing something you enjoy and makes you feel better perhaps with your husband who seems very supportive.

    I hope you feel better soon AuntieJ - we're all here for you anytime you need to talk.

    Best wishes, 

    Lucie

  • Thank you Crow. I am not sleeping very well My husband is an alcoholic but hasn't had a drink in years so that's a positive. My mother is in a nursing home up the road and she has Alzheimers. She's the last one standing from her generation of relatives. She has a home she lived in for 50 years which I am trying to sell. It's 2 hours drive from where we live and I am fed up with the going back and forth and getting stuff out. Yes my mother did not like throwing anything away. I am finding it all too much. 

    If I died tomorrow it would be the end of something I predicted years ago - being stuck with disposing of a house, the contents. The only thing I didn't predict was having another primary breast cancer in the same breast that I had it in before. As soon as I worked out I would have to have a mastectomy as I'd had radiotherapy already, that was it. I just gave up the ghost.

    I know too much about breast cancer now. And every day another well known woman dies of it. This time it's the head of Ann Summers. It's such a common kind of cancer that there's always going to be someone each week somewhere. 

    Seagulls

  • Auntie j 

    sorry to jump on the thread 

    sounds like you have so much going on bless you 

    have you had breast cancer in the past or do you have it now ? 
    I had breast cancer last July 22 back to fighting fit 

    im here to chat if you need me lots of love Lara ️

  • I was diagnosed with breast cancer in 2003. I had breast conservation and radiotherapy. I decided not to take tamoxifen due to side effects so I discharged myself in May 2004. I was 47 when I found my lump. I had two operations and a procedure under local anaesthetic when I developed an infection which did not respond to antibiotics. This drained out a lot of liquid. I ended up with a nasty looking scar. When that healed I had radiotherapy for 3 weeks.

    I had no further investigations or mammograms as my cancer didn't show up on a mammogram.

    19 years later I found two lumps and was diagnosed with a new primary in 2022. It was in the same breast as last time so I had a mastectomy but I went to a hospital that was able to do a diep reconstruction at the same time as the mastectomy. This time I had a lymph node next to the cancer which was like another tumour as it was full of cancer. All the rest of my axillary nodes had been removed in the previous surgery so they couldn't take any more out to test them.

    I have been told there could be lymphovascular invasion but how it will go is only a guess, maybe into the blood vessels in my chest. Having a diep reconstruction with a lot of new blood vessels linked to my own makes me quite confused. 

    The zeledronic acid is meant to strengthen my bones to stop the cancer spreading there. But it could also go to my brain, lungs, eye, pleura etc etc

    Seagulls