Haven't posted in a while

I have no one to talk to, my partner is an amazing lady who's there as much as possible for me but she's also the type to not talk about things because she doesn't want to upset me by talking about it and when I do talk about it she tends to change the subject not on purpose its just the way she is and will do the same with any subject we talk about. 

 

Anyway those that don't know me , I was diagnosed with at first stage 2 breast cancer with one lymph node involved back in July 21, in the Aug 21 they did a lumpectomy and axillary clearance and found out of the 18 lymph nodes removed 13 were cancerous and the lump was bigger than originally thought so they upgraded the cancer to stage 3, they cut all the lump out and I didn't want chemo or radiotherapy,  they gave me CT scans every 3 months because they'd found a shadow on my right lung. 

In July 22 after a CT scan in the may they told me I had 7 nodules , 4 in the right lung and 3 in the left and diagnosed me with stage 4 breast cancer,  I started Letrozole buy struggled badly with it, I had no quality of life and turned into a 95 Yr old stroke victim so the oncologist told me to stop it. 

In December 22 after another CT scan for shoulder pain they found no signs of cancer anywhere else and still only the 7 nodules in my lungs but the biggest one that they'd seen after they removed the original tumour had grown, they didn't say by how much just that it had grown and was now blocking part of my airway and causing the lung behind the tumour to shrink due to lack of oxygen and basically told me I was now open to infections and breathlessness and wheezing which I already have anyway , the oncologist wanted me to start tamoxifen but I refused , I want quality of life rather than quantity and I know it sounds rather contradictory because I have other health problems so my quality isn't exactly great anyway but I really can't handle the severe hot flushes and bone/muscle aches and pains that the medicines give me , at least untreated I can still get about without the need for help from others and I can still talk without turning into a slurring, stuttering old lady , that isn't the life I want , some days I'm fed up of wheezing and being breathless but at the same time I'd rather this than the side effects of the medications. 

I dont expect sympathy not everyone choses to remain untreated so I know no one will understand my choice .

I'm not expecting replies I just wanted a safe place to vent too that's all .

So if anyone as read this drivel then thank you for taking the time to read it .

 

 

  • Thank you for reply .

     

    And although I realise she's lost someone to this horrible disease  and im sorry to hear that but her comment of "I'm lucky I'm not here because  I've got cancer'  felt a bit below the belt to me and inconsiderate and uncaring or didn't it cross your mind that it would come across that way? 

     

    Saying "youre lucky your not on here because you have cancer" is as good as saying "haha you're gonna die or words to that effect" to me it felt like she was gloating because she doesn't have cancer and I do .

    The only problem with writing things is it often comes across as wrong or misunderstood,  you (seeing as you replied and she hasn't) obviously thought my reply was wrong and you misunderstood it, and maybe, just maybe her comment wasn't meant as it was sounded,  if she's as thought full as you say then I'm sure she'll be happy enough to correct what it was she actually meant .

     

    Take care .

  • I certainly did not mean for you to think that I was gloating, having watched two people that I love die from this disease, I would never do that, and I am sorry that I obviously chose the wrong phrasing, and that the genuine sentiment in my post didnt come through.

    Yes, I do consider myself lucky that as yet I do not suffer from this disease, having seen my sister and mother go through it, however, I certainly did no mean it in a horrible gloating way!  I am sorry that I offended you.

    I didnt comment back to your reply because, to be frank, I didnt want to say the wrong thing again and make the situation worse.

     

    Take care

    Marie

  • And this is exactly what I was referring to, written words often come across as wrong, it's not like spoken words where you can see if someone is being genuine etc .

    The best thing to do in this situation is for me to apologise as you already have , I am sorry you've lost 2 people,  family members at that thru this horrible disease and it must be a worrying time for you .

     

    I lost 2 close friends thru this disease so I have been in your shoes and now I'm on the receiving end , I hope you don't end up with this disease it's not nice from either side .

    Sorry for seemingly bitting your head of .

     

    Take care