Starting paclitaxel

Is there anyone on here who can give me some advice on what to expect with paclitaxel, I've just finished with fec and managed to continue working full time with the odd say off for recovery but worrying how chemotherapy weekly will effect me 

  • Hi, I have just finished 12 wks of Paclitaxel and found it manageable and have worked throughout my treatment.

    Prior to this had EC fortnightly and found this much harder than Paclitaxel.

    Best of luck with the rest of your treatment.

  • Thankyou for the reply, that's good to know 

  • Hi, I'm just about to have my 3rd Paclitaxol today, with 9 still to do. 
     

    So far, I've found it easier than I expected. Staff at York hospital lovely, very reassuring, they talk you through everything. I'm amazed to say that I actually look forward to going, for the care and camaraderie - not what I expected to be saying. I was terrified, but I read something that said 'you have nothing to fear, but fear itself'. I kept saying this over in my head. 
     

    The steroids impact for one night. Both times I've worked up the next day, after chemo at 2.15am and not gone back to sleep. However, rest of the week, had gorgeous sleeps. 
     

    I've felt a bit more tired, but still managed to work 3 days a week, albeit from home. Not lost my hair yet, but going with one of my pals for a wig this morning. We'll have a laugh and a cry, all at the same time. 
     

    Going for short walks makes a difference, both to my mental health, but in keeping my energy levels up. Using bicarbonate of soda mouthwash twice daily to avoid mouth sores. Have lovely lemon water in the fridge, to keep hydrated. Drinking lots helps the chemo flush through your body, keeps your bowels regular and stops you feeling dizzy.  I've had very few of these problems. 
     

    Before every chemo treatment I have fasted for 24 hours, just drinking liquids. Not for everyone, and you should read all the guidance about fasting before you consider. It was hard yesterday. I was desperate to eat, but it does appear to help with the symptoms. It also means that I LOVE my food at the weekend. 
     

    Really looking forward to going for Sunday lunch at our local pub and a gentle stroll on Sunday afternoon. 
     

    Finally, it's a good time of year to be doing this...I've planted lots of tulip bulbs...when they come up, this will be a memory...every bit of new growth will spur me on! I'm not always positive, but finding the positives in every new day, is a great comfort. I'm blessed with lots of gorgeous people who help me to do this, for which I am incredibly grateful  

  • Wow  thats such a lovely message and great information. 

    I start weekly taxol on 21st. So have been thinking about the affects and if there was any advice on how to deal with side affects.  I had carbo platin at beginning of this year and it really wiped me out. Then went on parp inhibitors but they didn't suit me. So going on taxol really worried me. But you have given me hope.  And you sound so positive .  I am normally positive and hopefully will cope well with it.

    Huge thanks 

  • Keep in touch. Tell us how you get on and sending all my best wishes...one day at a time, is all we can manage on chemo. There's no thinking about the future, just getting by for now

  • Thank you so much for sharing this. I start my weekly taxol on 29th Nov having just finished three cycles of EC and all the positive stories are making me feel less anxious about it