Hi,

I'm curious to other peoples experiences / opinions on whether they should expect more from their oncology team.

I'm living with bone Mets and a scan from July showed a new spine met. There was some doubt about it, so I had a further scan which confirmed it. 
I'm under care of 2 different teams (surgical and gen oncology) and when I spoke to them both they told me it wasn't further cancer. However, I always receive the images and reports, and the latest report confirms progression, which they don't seem to have even read.

I've tried chasing up both teams a few times about the contradiction but haven't had a response. My next appointment with them both is in a month.

If I wasn't pushy and sceptical of their opinions in general I'd still be thinking everything is A ok.

Why does it feel so different being a secondary patient compared to primary in terms of treatment.

When your a primary patient everything is done urgently, they throw everything to help you.

When your a secondary patient it feels the opposite. Even though your life is much more in doubt and time precious, there's never any urgency, don't really thoroughly check your concerns or details and leave you living in limbo all the time.

such a frustrating thing when you feel like your not getting the best care you can get but I don't think anything is going to change anytime soon for secondary patients.

Dan