Dealing with this cancer

Hi i needed to chat just to get these things off my chest as i am so angry with how this cancer is making my life so miserable. I have had CT scans and MRI's and needles shoved into me and canulars i have had appointment after appointment some were for my mask fitting but then cancelled, i have had all my bottom teeth removed as my jaw may not be strong enough to cope with the radiotherapy treatment i have been poked and prodded and i now have a date on wednesday for my mask to be made and fitted also a CT scan and MRI too. I think the staff i have come across has been amazing and even would call them true angels but i get really angry with people who keep saying it will be ok you can get through this ,and never been through this,never had to go through this but they think they know everything because they read a book. I keep thinking you have this and i will watch you go through it my head is in information overdrive and i know people mean well but sometimes i just wish they would just all go away and i will deal with this in my own may but i know we all need support through this i just get so fustrated , i dont sleep well i dont really have a life at the minute i just live i know that sounds silly but thats how i feel my life is on hold till this has all gone away. My wife is trying her best bless her and i could not do this without her but everyday i keep wishing this was someone elses problem i know this sounds selfish but i feel people do not really understand what i am having to go through in my body and mind. Sorry for the rant but i needed it.

  • I am sorry that you are feeling this way I am now four years in since my journey began and was doing well till this week.  You are going to have different feeling as you go thur this process.   Yes people can and will make you feel the way they do but they will at times bring comfort and hugs. Make sure your u get the right mental healt support for both you and your wife. And yes to just sit down and write your feelings out can and will help

  • Sending you a big hug I had five teeth out on Friday as they were not good enough , so I can start my Zoledronic acid for my bones. My journey started nearly a yere ago what a roller coaster ride !  Yes everyone knows best I shut people  out did not want to hear them say oh when so and so had it they were up and about doing everything.   You take care  nurses looked after me really well and always there for me x