Done! I finally lost it with my cancer unit and walked out

Just lately my cancer unit has been useless, having to wait hours past ur appointment time, having appointments canceled and not being told, nurses losing ur notes (twice) .

So yesterday I lost it and walked out! At the moment I feel so fed up with the whole thing and want to stop everything . I'm waiting for test results for possible secondary cancer after having inflammatory breast cancer and I just want to hide under the duvet and not talk to anyone. My husband understands and says it's my life and he will look after me whatever I decide. I know I'm being selfish but just don't feel able to keep going

  • Why should you lose out because of hospital mistakes and poor service? Get in touch with your GP, tell them what happened and ask if your cancer care can be transferred elsewhere. Alternatively, get in touch with hospital PALs say your care been so bad you actually walked out. Ask them what they can do to put this right? Even ask PALS about transfer elsewhere if that is what you think would help. Just be sure that is what you really want. And maybe drop in to your local Maggies Centre (if you've got one) have a cup of tea or coffee with them and tell them how you feel. They may be able to offer support and suggestions. Sending you love and a virtual hug. Rose xx

  • Thank you for your reply I appreciate it .

    I'm angry at the moment and I just want to have some space from them for a bit if u know what I mean. I'm due to have my kadsyler chemo treatment tomorrow so let's see if anyone calls me. I might feel differently next week and I'm worried that if I kick up a stink it will effect how I'm treated if u see what I mean. I'll give it some thought over the weekend and let you know what happens, thank you for letting me rant xx

  • Yes, I totally get what you mean!!

    Good not to be too hasty perhaps. The reason I mentioned GP first not PALs was because GP would make sure you weren't making rash decision whereas if you went straight to hospital while still angry... Maggies too give people space to think.

    I walked out of hospital once because I thought I was in for one procedure, but Consultant said he wasn't going to try that and tried to spring a GA on me – I had one of those white wristbands on and had been admitted but thought I was in for something much much simpler. I got so upset I kind of ran out. It was just the way he sprung it on me. My letter said I was having something different and here was doctor saying he wasn't doing that ... Sometimes there's a need to process things/reflect a bit more. Not that I'm saying make a habit of walking out obviously, just that I understand it can happen when people push us beyond our limits. 

    I remember being quite tearful, tearing off my wrist-band as I rushed through the waiting room announcing it's someone's lucky day you're going to get seen earlier because I've just copped out ... But really doctor was very naughty because what he wanted to do was quite risky and he should never have sprung it on a patient just like that.xx

  • When I had my first chemo before my surgery it was awful, I was so ill and had sepsis twice ending in hospital stays. But I always felt that I was looked after, then I needed more chemo because I'm HER+ and from the pre chemo assessment should have been a red flag. I had signed my consent for when I saw my consultant 2 days before, however my notes and the form had vanished. So the nurses had no idea what kind of chemo I was having. On the day of my chemo they still had no notes and that included the consent form!  I had to wait for hours for a doctor to get a new form and get me to sign it,  I think I was there for 7 hours in total.

    If I don't change my mind I don't know what will happen to me or when and im dreading telling my adult children. Time will tell I guess and after not seeing my GP for over two years ( yep our NHS is that crap) I might see if I can get an appointment next week. Xx

  • I too had a absolutely terrible time with my original cancer care staff (not everyone) oncologist, and unit. 

    After talking to my GP, I have moved my care to another hospital (game changer)

    Please try, I know it's hard when you are fed up, but there are medical professionals out there

    that really want to help.