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Just saying high

Tibetan4
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Hi everyone. I was first diagnosed with breast cancer in 2016. Treatment went well and we just got on with our lives. 
The cancer returned in dec 2021 and has now  mastisized to my skin and bones so I'm now stage 4. as a family we have dealt with this devastating news amazingly I can't put into words how love I have been shown

however last Thursday I had to be admitted to a&e due to sepsis. I can honestly say it was the worst experience I've ever had. 5 bed moves in 5 days. Missed meals. Medication not being given and an overnight stay on what was effectively a dementia ward as out of the 6 patients I was the only one who knew who she was. 
when I was finally discharged I cried and made made my husband promise not to make me ever go back there. But I know as this disease progresses there are likely to be other trips to a&e. 
feeling very helpless right now. 14 rounds of chemo. Stage 4 diagnosis all manageable. 5 days in hospital being moved from one ward to another has broken me
 

 

 

  • Hello tibetan4

    I'm so sorry to hear about your recent hospital admission. I hope that you've recovered from the sepsis and are able to take the time to relax and recover now that you're home again. 

    It sounds like it was a difficult time for you whilst you were an inpatient and I can understand why you felt helpless. I wonder if you might find it useful to feedback on your experience with the hospital via their PALS team? PALS are there to provide a point of contact for patients, their families, and their carers and to help resolve concerns or problems when you're using the NHS. You may get some positive feedback from the hospital about the issues that you raise that help you feel less anxious about any future hospital admissions. I'd also consider mentioning to your oncology care team about your experiences. 

    If you want to talk to one of our nurses for some support you're' most welcome to call them. They're happy to provide a listening ear and offer any advice and support that they can. They're available Monday to Friday 9 am to 5 pm on 0808 800 4040. 

    Take care of yourself tibetan4. Keep in touch and let us know how you get on. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

  • Offline in reply to Moderator Jenn

    Thanks Jenn

    will speak to pals team soon but unfortunately back in hospital again (different one) so will have to wait a few days 

     

     

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