Hi

Hope your feeling better now. My daughter is in a similar situation. Shes had 4 ABVD treatments and has had her PET scan. 

Awaiting results on that, I wanted to ask you are you still on ABVD. Have you had your scan ?. 

Thanks 

Hi 

Get my scan next week. 

Still on abvd. Will change to beacopp if not good scan 

Yes she's getting her results on fri and she will be told which treatment she will need either ABVD OR ESC BEACOPP. Can I ask you how yours got to stage 4. My daughters was in her neck, armpits then lung. She had a lump on her chest.

She didnt have any symptoms other than the lump and back pain. She also lost weight but looked fine otherwise 

Did you have severe symptoms like constant night sweats, weight loss etc ?

I have it in my neck, abdomen, liver, spleen, rib and 1 of my vertabrae. 

No B symptoms eg night sweats or weight loss. 

My daughters is classical hodgkins nodular sclerosing type. What is yours?

Since she has started treatment she also gets back pain ocassionally, im hoping it's moreso that the tumour is breaking down, her lump was 9x7x7 approx. Do you have any idea of how big yours are ?

Hi 

I'm not actually sure what my subtype is. A I know is that it's classical hodgkins. 

Re. The pain I also hope this is due to the chemo because my pain is worse now than before chemo started. 

I'm not sure about size I think my neck node was 3-4 cm wide but as for the rest of my body I'm not sure  I just know the sites where the lymphoma is located