Hi everyone,
I just thought I'd post an update on here if it's useful to read by anyone going through similar.
I was diagnosed with rectal cancer after a mid rectal polyp was removed by endo mucosal resection in November last year, and was found to contain cancer. Cue an absolute rollercoaster of a diagnosis process but after much consideration I decided to have a low anterior resection procedure with temporary ileostomy to reduce my risk as they weren't sure they got it all out (less than 1mm margin).
Surgery went well but I now know why they recommend preventative surgery when you're young - I did feel like I was hit by a bus and something as simple as having a wash would require a 2 hour nap afterwards. However I'm doing well 5 weeks on and coping with the ileostomy bag well. I received my histology results which were T1N0M0, so the surgeon confirmed I need no further treatment such as chemo, just my ileostomy reversal and regular surveillance with scans and colonoscopies for the next 5x years.
What I've found so important about this experience is the need in pushing for answers, trusting your gut and going to the doctors and advocating for yourself at the first time you get any untoward symptoms. Nothing good comes from leaving something because of fear of the outcome.
Next steps for me are a water soluble enema to check the join of my colon to rectum, some genetics testing because I'm under 40, and then my ileostomy reversal in about 5-6 months. This is in addition to my CT scans, urea and electrolytes checks, CEA checks and endoscopies for the next 5 years.
If anyone wants to message me with any questions about my experience I'd be more than happy to help.
All the best in your journeys,
Betty
xxx
