Mum - Stage 4 Lung Cancer with Metastasis

Hi, 

This is my first time posting on the forum, I joined a while ago but up until now I’ve just been reading posts. My mum is 65, she went in for a routine check up before ankle reconstruction and came out with a diagnosis of stage 4 lung cancer with metastasis to her liver, lymph nodes and a couple of other places. She was given 2 weeks to live without any form of palliative treatment, she had one round of chemo/immunotherapy and she is still with us 5 months later although I think she’s nearing her time, she had been a smoker until about 8 years ago, she already had COPD.
 

I currently live in Australia and she lives in the UK, I managed to fly back and see her for a week the week she was diagnosed but I haven’t seen her since and I won’t see her again before she dies. I'm struggling because I'm one of those people who needs plans in life and needs to know dates etc and obviously that isn't going to happen with knowing how much longer she has.

 

I’m an Emergency Nurse, so I don’t know if that helps or hinders me as I know a lot more than a non medical person which is a good and a bad thing I guess, I’ve researched as much as I can but I can’t find many answers about the bleeding but she’s been bleeding a lot from her back passage (like a substantial period near constantly she says) and sleeping all the time, I’m worried she’s going to haemorrhage and no one will be there with her as she lives alone, my sister is about 20 mins away and is there when she can be. I feel like she’s given up now as she said to me yesterday that hopefully it’s coming to an end now, I just want her to go without pain and in peace and it’s so hard being on the other side of the world and unable to be with her. I’m surprised she is still with us tbh.

Anyway thank you for listening. I am sure I will post more during the coming weeks.

  • Hi, really sorry your mum is going through this and I was wondering if there is any way that your mum could be given some kind of care.  Has she been offered the choice of going in to a hospice or having nurses come in to her home to take care of her in her last days?  I know it must be awful for you being so far away and unable to do anything, but when my brother-in-law was dying of cancer last year, he had a team of round-the-clock nurses taking care of him.  I know that here in the UK, cancer care can be a bit of a lottery post code, and some areas take better care of their patients than other areas, but I am sure your mum must be entitled to some palliative care.  Please keep us informed, take care, Violet, x

  • Thank you so much for your reply, she said she's been in touch with someone who can try and find her a hospice space but they will only take her if she has 2 weeks or less to live, she hasn't been seeing doctors or anything since deciding to stop treatment and it feels like she's been totally forgotten about so how anyone would know an estimate of how long she actually has, I have no idea, hopefully they will be able to find her a place as I would rather her be in there and supported than alone x

  •  You are welcome, I so hope your Mum gets the help that she needs now that she is in her final days, take care, Violet, x