Ureter cancer now spread to bladder

Ureter tumour removed July 2021. Follow up chemotherapy from November 2021 to January 2022.

CAT scan clear. 

Had check up cystoscopy last week and discovered three tumours in bladder.

Consultant planning to shave these off next week.

Very disappointed with current situation as chemotherapy was based on a successful trial.

Wondering what other surprises could show up in different locations.

Parents
  •  My husband has the opposite problem He was treated successfully with bcg for bladder cancer and he has been clear for 6 years Following blood appearing in his urine a couple of months ago a tumour was found in his ureter Kidney and ureter  removal  not an option as kidney on tumour free side has low function due to previous  kidney stones Consultant reluctant to do anything  other than monitor and laser recurrence whilst it remains  in ureter but it will at some stage get out and the treatment will be palliative 

    Would you let me know what treatment you have had and the details of the trial

    Good luck with you future bladder treatment 

    best wishes 

    Wilbert

  • Hi Wilbert

    Just to let you know that my Ronnie did really well on his first BCG. In and out in 20 mins. Did not feel a thing and had no pain after at the loo. So i just hope the next one on Saturday goes as good as the first. He managed the 2 hours and was told to drink after the first hour. We managed to get home in 50 mins so all was well. Thinking of you and David. 

    Take care and stay safe

    Regards Renny

  • No quite sure unless I'm pressing reply twice

    Fingers crossed Ronnie will be ok we went away once a week after John had OP just took it easy Maybe if he feels ok let him try to fish and see how it goes 

    John served an apprenticeship as a mechanical fitter then retrained as an instrument mechanic then became the workshop engineer and in a complete change a new managing director asked if he would retrain as a safety and environment manager So he went back to college and hot his qualifications and was in that job til he retired at 60 The company was multinational so he travelled quite a bit in Europe 

    The company he worked for ground corn and certainly in the early days some if his jobs involved chemicals which the hospital quizzed him about when he was first diagnosed 

    I'm just about to do a bit of weeding we have a guy who does the garden but his weeding isn't that brilliant bit superficial so as its sunny here I'll stir myself 

    I like the sound if your plans 

    lots of love 

    Celia xx

  • He sounds a clever man your John. Ronnie was over health and safety and he retired at 60. He just came home one day and said he had had enough and i didn't stop him cos he looked like death warmed up some days. That's when we decided to go to Spain. We had been planning it for years but only wanted to go for 10 then come back. A lot of bad things happened  to us in Spain  Where ever we went the locals didn't wont us there and drove us out practically. Someone tried to forge our name ETC off our passports when they broke into the house and  the bank got in touch and told us. They new it was a fake letter as they spelt my name with Si not Sy. Anyway nothing become of it because the police didn't want to know. they didn't get any of our money because it was all in Jersey in a tax free bank account. That money was from the sale of our house and for us to come back to the UK with. The worst thing that happened to us was my mum died while we were there she was 97.I used to write a few lines to her every day and post it at the end of the week. When we got back for the funeral the home she was in gave me the last letter i posted to her she died before she could open it. I put it in her coffin unopened . When we went back for her funeral i had made my mind up after 5 years that we were coming home and 3 month later we were in a rented cottage in Leeds. I could write a book don't you think. Everyone and everything was against us and i hated living in the heat. You couldn't go out in the day you couldn't get a seat on the bus or a taxi because of the tourists You just seemed to exist because all the Spanish wanted was your money. We gave it a go and it just wasn't for me. Ronnie loved it but he is so laid back he was almost vertical. But he said if i wasn't happy we should go home. Know i regret ever going. It seams 5 years was lost out of our lives. The only good thing about it was they got rid of Ronnies prostate cancer but they could have done that in Leeds. Where happy know apart from the obvious. We  still live in a rented bungalow cos it was too late in life to buy again plus we have no family to leave a house to. So that's a bit off my chest thanks for listening to me moaning. Hope you got plenty of weeding done where getting rain tomorrow.

    Take care 

    till next time 

    love Sylvie xxx 

     

  • You poor love you had an awful  time in Spain not surprised you came home early We thought about Cyprus but cahanged our minds A friend who did  reture to Spain is having problems  at the moment  with her neighbours and is thinking of moving Its not good 

    Pleased with my weeding looks lot better then sat in the sun and read for awhile 

    I envy you having g your Mum for so many years I was 21 when mine died

    We thought about moving to a bungalow but decided to stay put and do equity release to free up cash for hols work on the house and a new car

    Take care lots of love from us both 

    Wilbert xx

  • How sad to loose your mum so early in life. My mum was so lovely and kind and never had any friends all she wanted was my dad who was one in a million and my best friend. I am the youngest of 5 and i was always his favorite. My dad died of lung cancer at 87. He was a slaughter man and would you believe he couldn't stand seeing human blood.  When i was loosing clots of blood after having 3 teeth out when i was 12 he was sick in the loo for hours. I miss him to this day even tho it's 19 years since he was here. When my mum died they put on her certificate death from old age. I thought that was lovely not putting heart attack. 

    Yes it's nice to do the garden and get up the next day and see all the hard work you have put into it. My knees wont let me do it know but i used to enjoy it when we had our own house. 

    I read that Spain in 2023 are checking at customs to see if you have enough money to stay there and have proof of where your staying. A bit like Australia. Cheeky gets. Probably wont print that last word lol. Somethings gone wrong again as i got 2 same emails.Not to worry i just delete one of them. 

    You do right staying puy in your house. Get as much money as you can out of it and tell your friend to get the hell out of Spain. After brexit it's only going to go down hill with the prices. As for Cyprus we went a few years ago and the cost of living there is terrible dear. Not only that but the Russians own nearly all the tourist parts. We were told that by a rep. We have been all over out of this country and there is nothing like been with your own kind. There is some beautiful places to go for holidays. I love Devon and if i ever won the lottery i would be off like a shot. But that wont happen cos we don't do it. Oh well never mind.

    Take care till the next time 

    Love to you both

    Sylvie

    xxxx

  • TRIED FOR 3 WEEK TO GET A NEW PASS WORD BUT NO ONE GAVE ME ONE SO HOPE YOU GET THIS MESSAGE TO GET IN TUCH LOVE FROM SYLVIA XXX

  • CHANGED MY USER NAME CELIA GET ME DOWN AS A FRIEND PLEASE SO WE CAN KEEP IN TUCH LOVE FROM SYLVIA XXX

  • Rejected first but now sent you a friend request x

  • finally i found you. The last time i tried to talk to you they said i had to change my pass word as the page had a new set up. I tried for 2 week to get a new pass word going with no luck. I even went on  the other site and looked for you and left a message on there. So the only way i could get to you is by starting up a new account hence the new Ronaldo c. Any way all is well with us Ronnie is in next Friday 8.45 to get his stent changed and hopefully get the left kidney back taken off and back into Fred. I have booked the visitors flat at our Wendy's place for the Thursday night so we are only 15 mins away from the hospital. Also i am hoping with him been in at 8.45 he wont be kept in overnight. How are you and John ? I bet you were wondering what happened to us not hearing from me. All is going well with my steroids the blood test i had last Wednesday came back normal so i am waiting for the doc to lower them again. Ronnie is still waiting for his sugar test result. Ronnie got a letter to say he was getting a phone call from the urology nurse for a catch up in November. i suppose that's instead of him seeing the consultant. It's just 11 month know since his op and no sine of a consultant out patients app. Anyway i will dry up so i can hear any news you have for me. Lots of live to you and John from Sylvia and Ronnie xxx

  • I have been  wondering as I had sent 2 messages So I looked on the MacMillan site and saw your message I deleted the friend request but then sent in to you Bit of a mix up but sorted now We are ok COVID and flu jabs done I had to take antihistamines after flu as I  had very  itchy red lump on my arm Had mega row with gp told me John needed blood tests every month for 4:months I said no it's every 4 months I was there when consultant told us Long story short she rang next day to apologise Still changing practice  I know 8 couples who have left them Had friend from Spain and USA over The USA friend has lost half her weight she looks much better for it Got very comprehensive travel insurance I used a broker recommended by our neighbour Its cost £1500 for the year but at least I have peace of mind We go on Thursday for 2 weeks and back a month and return for 4 Just need to pop into Tesco for a sunflower lanyard also recommended by our neighbour It indicates a hidden disability and fast tracks you thro airport and in shops I've booked us the lounge as usual so we have somewhere peaceful to wait and eat John got all the new plants in just over 100The reiki seems to have helped his energy levels improve Hope all goes well for Ronnie Good to hear your levels are normal Take care lots of love from Celia xxx

Reply
  • I have been  wondering as I had sent 2 messages So I looked on the MacMillan site and saw your message I deleted the friend request but then sent in to you Bit of a mix up but sorted now We are ok COVID and flu jabs done I had to take antihistamines after flu as I  had very  itchy red lump on my arm Had mega row with gp told me John needed blood tests every month for 4:months I said no it's every 4 months I was there when consultant told us Long story short she rang next day to apologise Still changing practice  I know 8 couples who have left them Had friend from Spain and USA over The USA friend has lost half her weight she looks much better for it Got very comprehensive travel insurance I used a broker recommended by our neighbour Its cost £1500 for the year but at least I have peace of mind We go on Thursday for 2 weeks and back a month and return for 4 Just need to pop into Tesco for a sunflower lanyard also recommended by our neighbour It indicates a hidden disability and fast tracks you thro airport and in shops I've booked us the lounge as usual so we have somewhere peaceful to wait and eat John got all the new plants in just over 100The reiki seems to have helped his energy levels improve Hope all goes well for Ronnie Good to hear your levels are normal Take care lots of love from Celia xxx

Children
  • It is so nice to hear from you i new you would get back to me when you could work it out. You will be a lot better when you can get to see a new doctor it's the best thing i ever did. I have been doing some therapy today as in baking. I made 12 sultana  buns, 10 sultana  scones and 12 strawberry tarts  and i feel a bot better for it. I am in my own little world when i bake. Just  as well Ronnie cleans up after me. Will you keep in- touch when your away ?t's time for bed. So i will dry up and say goodnight Lots of love Sylvia xxx

  • Great we are connected again Yes I'll keep in touch the WiFi at the hotel is very good I've asked for a sunbed on the balcony  so I can lie in the sun and read and John can be in the shade Looking forward to walking along the coastal path to the marina for a glass of wine It's a lovely  walk  With the cliffs and sea on one side Your baking sounds good John's consultant  is a baker he showed us pics of his cakes He us only allowed in the kitchen twice a week as he makes a mess Lots of love Celia xxx

  • i am having a lazy day today. I was on my feet all day yesterday. But when i go in the freezer and see what i have made i think well thats Ronnie taken car of for a few week. The suns out today for a change but i think Ronnie has stopped the fishing for this year. When he went last week it wasnt raining but he said it was freezing. I am glad in a way because then i can get him to finish a few jobs off that he started in January. We had to get the pest control in last week as we had a wasps nest in the guttering. The landlady sorted it straight away and he charged her £60. He didnt take a minuet before he was off. Money for old rope so to speak. Then the fridge conked out so i bought another one same as. It was even cheaper than 8 years ago. So i am just waiting for the third and last thing. They say it comes in threes. I cant remember if i spoke to you about our Pauline and Alfs 60th wedding ann party. There was 25 people there and it was lovely seeing old faces that we only see on special occasions Pauline came over straight away and gave me a kiss and asked how Ronnie was doing and she said she new all about what we have been through our Maureen had been keeping her up todate. She sounded genuinely upset about it all. The meal was get anything you want off the menu and any drinks. They paid for the lot. She comes home from Benidorm today. They went for 2 week. I am just hoping the Leeds Bradford airport is open as they shut it because of the storm and a plane skidding off the run way. All in all we had a good night. Ronnie shuck hands with Ronnie and asked if he wanted a pint so i was pleased he did that. We found out that our great nephew was made a Sargent in the police and he is only 25. His mam and dad went to Australia a year ago for the second time and i asked him if he was going to follow them and he said no way i want to make inspector. He was named Sam after my dad. His mam is a midwife in Australia and i dont know what our Steven is doing. They dont keep in touch but we find out through the family. Well i will have to go get a shower and plan my viewing for the day Ronnie had the ruby on all last night so it's my turn today. Regards to your John take care Love from Sylvia xxx PS your consultant sounds right up my street. xxx