My husband has the opposite problem He was treated successfully with bcg for bladder cancer and he has been clear for 6 years Following blood appearing in his urine a couple of months ago a tumour was found in his ureter Kidney and ureter  removal  not an option as kidney on tumour free side has low function due to previous  kidney stones Consultant reluctant to do anything  other than monitor and laser recurrence whilst it remains  in ureter but it will at some stage get out and the treatment will be palliative 

Would you let me know what treatment you have had and the details of the trial

Good luck with you future bladder treatment 

best wishes 

Wilbert

Hi Wilbert

Just to let you know that my Ronnie did really well on his first BCG. In and out in 20 mins. Did not feel a thing and had no pain after at the loo. So i just hope the next one on Saturday goes as good as the first. He managed the 2 hours and was told to drink after the first hour. We managed to get home in 50 mins so all was well. Thinking of you and David. 

Take care and stay safe

Regards Renny

i will 

xxx

Hi Celia, Do you think Ronnie will have to go for a pre op before the procedures .

Love Sylvie xxx 

Probably if it's a general anaesthetic  xx

Thanks

lv Sylvie

xxx

Hi Celia just to let you know Ronnie has to go for his health checkup next Tues to our Cancer hospital. Then go for his ureter biopsy and colposcopy on the 2/9. So you were right he does have to go for the check up first. He has to be in on the 2/9 at 7.30 am so where getting a taxi and our nieces partner is bringing us home. I am just hoping he wont get a catheter put in cos Ronnie hates them. His cancer nurse said no so lets hope she is right. We go to Yellowtops fishing on the 10/9 so i am hoping Ronnie will have got over it by them. It's not far from where we live only 9 miles so not far to drive and if he doesn't feel up to fishing we will just have a quiet 6 days away from the 4 walls. The last time he went for the turb and stent in and a biopsy on the ureter he had a bag but this time i don't think they will do a turb hopefully. He went to the docs for his MOT and passed this week so that was a bit of good news. Did you see on the news that they have found a way to change a persons blood group so anyone wonting a kidney transplant can get one because they can make the blood group to o for both people. That's great news.

Well i will say goodnight godbless until the next time .

Love Sylvie xxx

Glad Ronnie's mot went ok 

More waiting it's the pits We are off to Skipton then the same hotel as last week for a night before Hms Pinafore  in Harrogate As you say gets you out We went to lunch with friend  in Cheahire it's her first birthday since she lost her husband We had a good day and talked about him 

Hope you manage to get away On occasion  John has woken up with a catheter but it's been removed after a couple of hours  Fingers  crossed for Ronnie Thanks for the info about transplant and blood I hadnt seen it Bet you are line me would give one but I guess age is against us

Take care

Love and hugs 

Celia xx

I would give Ronnie a kidney at the drop of a hat. problem is he's are ok he needs a new ureter which they don't do. Anyway we have 2 weeks grace before he goes in and they tell us what they have found but i will fight tooth and nail before they take is kidney and the rest. Just hope it doesn't come to that.

Enjoy your trip i like Skipton market.

Speak again soon love Sylvie xxx

hi Celia Ronnie got his hospital letter for the 2/9. Also he i mean i had to phone up and confirm he will be attending on the day. Also he i mean i  had to phone up and order a lateral flow test to take 3 days before he goes in. Then when he has done it he i mean i  have to phone the result in and then take it on the day to prove it was negative. I can tell you none of that would have been done if i wasn't here. Ronnie does not do phones he is deaf and he is not web savvy. So to ask an 82 year old man to do all that is disgraceful and i will be putting a complaint in to the hospital. It will be interesting to see what your John has to do before he gets seen to My niece is going in for a hip replacement next week and all she has to do is a coved test at the hospital th day before. ?

Hope you have a nice time away take it easy and enjoy the HMS Pinafore

Love from Sylvie xxx. 

Sounds like Ronnie and John are a pair John has hearing problems and also isnt web savvy I sort everything like that out either phone or online

On the other hand he has just replaced the hinge on the washer door which I had to order on line He had to adapt it to make it fit but we got there as a team I suspect you and Ronnie make a good team We have to play to our strengths 

I agree about hospital staff who fail to realise people have different needs and take a one size fits all approach I had a night in hospital years ago with an eye problem I said I was having a shower and the nurse spoke very slowly telling me to put my hand under the water to make sure it wasnt too hot She had the grace to blush when told her it was my eye causing the problem my brain was working fine

We enjoyed our trip Luckily my brain was engaged again as the hotel tried to charge for 4 drinks we hadnt had and dudnt deduct the 10% discount we had been promised 

Keep up your good work for Ronnie 

Love and hugs 

Wilbert

I had a chuckle about the eye thing so did Ronnie i read all your letters, to him.. Well we all cant be good at everything can we so everyone to each there own so they say. What did your John do before he retired. Ronnie used to be an engineer sheet metal. When we first got married we had very little money and he used to make garden gates and anything to do with metal for the garden even candle sticks for Xmas. I used to sell them to the work colleges in the bank. They say that chemicals can also give you bladder cancer even hair dressers using chemicals. So another trip to the hospital on Tues i wish they could have done his pre check up and the coved test all together a few days before the op. But where not that lucky. Anyway best get the washer on and another salad made. Do you think Ronnie will be OK to go fishing after his op. It will be 8 days after it. I told him if he isn't up to fishing we will just have a lazy 6 days watching TV and playing cards and maybe a trip out to York. It's not that far from Foggerthorpe where the yellotops is. There's a nice pub down the road so we can go for a meal there. What will you do about getting to and from hospital when John goes in for is op. Will you be able to drive. It's a bit of a bind when you have to get Taxi's and they say the NHS is free. Well it isn't when your shelling out for petrol and taxis.

Take care and loads of love your way from Sylvie.xxx

I had a chuckle about the eye thing so did Ronnie i read all your letters, to him.. Well we all cant be good at everything can we so everyone to each there own so they say. What did your John do before he retired. Ronnie used to be an engineer sheet metal. When we first got married we had very little money and he used to make garden gates and anything to do with metal for the garden even candle sticks for Xmas. I used to sell them to the work colleges in the bank. They say that chemicals can also give you bladder cancer even hair dressers using chemicals. So another trip to the hospital on Tues i wish they could have done his pre check up and the coved test all together a few days before the op. But where not that lucky. Anyway best get the washer on and another salad made. Do you think Ronnie will be OK to go fishing after his op. It will be 8 days after it. I told him if he isn't up to fishing we will just have a lazy 6 days watching TV and playing cards and maybe a trip out to York. It's not that far from Foggerthorpe where the yellotops is. There's a nice pub down the road so we can go for a meal there. What will you do about getting to and from hospital when John goes in for is op. Will you be able to drive. It's a bit of a bind when you have to get Taxi's and they say the NHS is free. Well it isn't when your shelling out for petrol and taxis.

Take care and loads of love your way from Sylvie.xxx