Ureter cancer now spread to bladder

Ureter tumour removed July 2021. Follow up chemotherapy from November 2021 to January 2022.

CAT scan clear. 

Had check up cystoscopy last week and discovered three tumours in bladder.

Consultant planning to shave these off next week.

Very disappointed with current situation as chemotherapy was based on a successful trial.

Wondering what other surprises could show up in different locations.

Parents
  •  My husband has the opposite problem He was treated successfully with bcg for bladder cancer and he has been clear for 6 years Following blood appearing in his urine a couple of months ago a tumour was found in his ureter Kidney and ureter  removal  not an option as kidney on tumour free side has low function due to previous  kidney stones Consultant reluctant to do anything  other than monitor and laser recurrence whilst it remains  in ureter but it will at some stage get out and the treatment will be palliative 

    Would you let me know what treatment you have had and the details of the trial

    Good luck with you future bladder treatment 

    best wishes 

    Wilbert

  • Hi Wilbert

    Just to let you know that my Ronnie did really well on his first BCG. In and out in 20 mins. Did not feel a thing and had no pain after at the loo. So i just hope the next one on Saturday goes as good as the first. He managed the 2 hours and was told to drink after the first hour. We managed to get home in 50 mins so all was well. Thinking of you and David. 

    Take care and stay safe

    Regards Renny

  • Hi Wilbert

    Ronnie had his 4th dose of BCG today and all went well. No infection but still a micro of blood in the urine but not a problem. She said they would be conserned if there was clots so very pleased he got that over with. She gave hime a blood test to do at our little blood bank thats in our  hospital in Selby. It's a walk in one so just take a number and sit and wait. I dont know why she wants that doing. Most likely for the consultant for when he goes for his camara up after his 6th dose. 

    I noticed the picture of you and your John on your profile,  it's lovely. I will put one of me and Ronnie on mine if i can find one. 

    Let me know how your John goes on wont you.

    Take care. The covids back 

    Love and best wishes 

    Renny

     

  • Hi Renny

    John

    had his first mitomycin yesterday and all went well

    It hasn't irritated his bladder like the bcg did but he had a headache and felt tired Think mainly down to the  stress of not knowing how it might affect him Its put in the same way as the bcg I'm glad Ronnie is getting on with it ok

    He was out on his bike twice last week which he enjoyed 

    The photo was taken on 1st June in Playa Blanca our 54th wedding anniversary I'm not great with technology and was playing about as I saw you had a photo on

    Take care Must admit I'm now wearing a mask sometimes if I think it warrants it

    Best wishes 

    Wilbert xx

  • Hi so very pleased he has no side effects to speak of lets hope it stays that way.

    We have been to playa blanca for the day. We went over on the Fred Olson ferry from i think it was furaventura. Nice place very quiet.

    Off to do the washing while Ronnie has a nap.

    take care 

    Big hugs to you both

    Renny

  • Thank you

    Great photo of you both 

    Hugs back

    Wilbert  xx

  • That was taken on the paddle boat that goes down the Mississippi in memphas.Ronnie is a big Elvis fan and i booked 7 days away at the Radison hotel in Memphas for his 65th birthday. I didnt tell him till the day before. He thought we were going to Spain.We went to Gracelands it was fabulous. The hotel has changed names know but we were right next door to the Peabody hotel and every day at 3pm out from the lift from the top floor came these malard ducks and waddled down a red carpet and got into this big fountain in the foyer and had a swim for ten minuets then went back up in the lift to there room. Unbelievable . Loads of people just went to the hotel to see them and take pictures. 

    Great memories

    Love Renny

  • Sounds fabulous Our friend who lives in North Carolina was a Graceland  with his Dad a couple of weeks ago

    This time 3 years ago we were in Savannah and had a paddle streamer trip  we flew  up when visiting  our friends in Rhode Island and the year before we were at Niagara on the lake to visit the falls As our friend remarked as it rained when we waited to board the boat "we are getting *** wet thro " It was so funny as she isnt known for using bad language 

    You did well booking everything and surprising Ronnie I'm impressed 

    love

    Wilbert xx

  • Had a good laugh at the bad word. You have to do it some times. I must admit i do do a bit sometimes to get the anger out of my system. Feel a whole lot better afterwards. I will never be a lady Ronnie says. But he says who cares.

    Love Sylvia

  • I used the word but who ever runs the site substituted **** Gave me a giggle 

    It amuses me i do swear and people looked shocked For some reason  people who dont know me well think I am ladylike but it's all a facade 

    Love 

    Celia x

  • You have made my night 

    x

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