Ureter cancer now spread to bladder

Ureter tumour removed July 2021. Follow up chemotherapy from November 2021 to January 2022.

CAT scan clear. 

Had check up cystoscopy last week and discovered three tumours in bladder.

Consultant planning to shave these off next week.

Very disappointed with current situation as chemotherapy was based on a successful trial.

Wondering what other surprises could show up in different locations.

Parents
  • Hello mofski45

    I'm sorry to hear that your recent check-up showed there were some areas of concern. It's natural that you're feeling disappointed by this and worried about the next steps. 

    We know that dealing with disappointing news and facing more uncertainty can be a really difficult time for many people. Some find it helpful to chat things through with someone who understands and I wonder if you might find it useful to speak with one of our team of nurses ahead of your next appointment? I'm sure they will be happy to offer any advice and support that they can as well as help you think about the kinds of questions you might want to raise with the Consultant. If you'd like to speak with them they're available Monday to Friday 9 am to 5 pm. 

    I hope that your procedure next week goes smoothly. Keep in touch and let us know how you get on. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

Reply
  • Hello mofski45

    I'm sorry to hear that your recent check-up showed there were some areas of concern. It's natural that you're feeling disappointed by this and worried about the next steps. 

    We know that dealing with disappointing news and facing more uncertainty can be a really difficult time for many people. Some find it helpful to chat things through with someone who understands and I wonder if you might find it useful to speak with one of our team of nurses ahead of your next appointment? I'm sure they will be happy to offer any advice and support that they can as well as help you think about the kinds of questions you might want to raise with the Consultant. If you'd like to speak with them they're available Monday to Friday 9 am to 5 pm. 

    I hope that your procedure next week goes smoothly. Keep in touch and let us know how you get on. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

Children
  • Had a TURBT procedure and surgeon removed numerous tumours. Now awaiting pathology report (about 2 weeks normally). I expect some form of treatment will be available but the fact chemotherapy was so ineffective that I would be very reluctant to accept more. Hopefully more options will become available when tumour grading is identified.

  • Good luck with the outcome, all on here will be thinking about you i am sure.

    Stay positive, 

    Regars Renny

  • Have great holiday that is one of the best places ever and Ronnie and me have been there lots of times.

    After living in Spain for 5 years sadly we wont be flying any more we both cant stand the hassle.

    Let us know how your meeting went with the consultant. 

    Fingers crossed

    Renny

    xx

  • Will do I must admit Manchester airport was a nightmare hopefully our return will not be as bad xx

  • I think there getting there act together so fingers crossed you will be OK.

    Take care and safe jurney home 

    Renny

    xx

     

  • Hi, just got back from the hospital and Ronnie couldnt have his second BCG because of a urin infection which was caused by last weeks BCG. So left a sample to see what antibiotics to be given. Said it would be another 2 weeks before he could continue with the BCG. 

    I also asked about what she thought would happen if his ct scan came back with a tumer in his Ureter. She said they could not take the tumer out because the lineing of the Ureter was too thin and it would leave an hole and that could cause any cells to escape and spread. So she said after the 6 BCG and it is a malignant tumer, which they think it is, he would have to have the kidney out and the Ureter x a bit of his bladder which they call a cuff. She was quite optimistic that the BCG would clear the bladder so that was something to cling to. But i have to be honest i just burst out crieing about his kidney getting taken out because there's nothing wrong with it. 

    Anyway we will get through it together like we always do.

    Take care both of you 

    Renny

    xx

  • I do know urine infections are sometimes triggered bu bcg but it is very successful in treating bladder cancer even the high grade carcinoma  in situ which husband had 

    We were told same about the ureter but I understand its possible to remove  tumour with cryotherapy or laser Problem  is it returns which means it will eventually  escape unless the kidney and ureter are removed Unfortunately my husband ha the tumour on the side where his kidney functions at 80% due to previous kidney stones his orber kidney only functions at 20% so removal  not an option Hopefully mdtwill have answers maybe chemo or radiographs 

    Like you we will get thro it together like we always have 

    Sending live and a hug I'm not looking forward to going home on Monday I have been able to put the situation out of my mind for quite a lot of our holiday 

    Wilbert xx

  • Hi, 

    I would like to add a few comments to your recent posts.

    My consultant was able to remove a ureter tumour 8cm long. My understanding is that if the tumour is located close to the bladder then the affected area of the ureter is removed and a "new" section of ureter is made by creating a flap made from the bladder wall. It's called a Board flap.

    Might be useful to discuss with your surgeon.

    Mofski45