Secondary breast cancer

Hello my wife hasn't long been diagnosed with SBC ,liver ,lungs ,bones.We are distraught,she has just completed 1st three weeks of pablociclib ( also having fulvestrant and denosaumb injections).The last 10 days have been horrible, the side effects really kicked in,I'm so scared,she's lost weight and is jaundice.Im a mess,I had to phone the 24hr chemo line,she was that bad last week,and she had to spend the night in hospital.They have since changed her anti sickness tablets,which helped a lot,but she seems to be very,very tired most of the last couple days,I mean getting up for breakfast and basically going back to bed.I'm on the verge of giving up work,to look after her,I'm 52, my wife is 57.Please anyone,does it/ will it get any better?..........I mean I know it's stage 4 incurable,but will the treatment get more tolerable,I know this is going to be a hell of a journey..We never had children,do everything together,and I feel like I'm wasting away.But I know I got to stay strong.Any positive stories and stuff would be much appreciated 

 

  • Hello I'm so sorry to hear that about your wife,just to let you know it will get better.The side effects are horrible and the tiredness also,it is normal to feel so tired I used to wake up feeling tired and also feeling sick,I used to eat ginger biscuits which helped a bit,also make sure your wife drinks plenty of water to flush the treatment through,try not to worry I know it must be difficult also to see her that way and feeling helpless,but you just being there with her makes all the difference.Hopefully soon your wife will be feeling a bit better.

  • Thank you,it's so awful.....i really hope it gets better ,and I really appreciate you replying,I have read so much about secondary breast cancer lately,.My wife is Her 2 Positive ER negative 

  • I'm so sorry to hear you are going through such an incredibly tough time. There's lots that can be done to manage the side effects so plesse keep talking to your team - writing them down helps too. I found the Liz Oriordan Complete guide to breast cancer book ver6 helpful. One of the things Liz advocates is dragging yourself out for a walk every day regardless of how fatigued you are as she says it helps energise you when exhausted. I've followed this advice when I've been shattered and always feel a bit better. Don't know if that is worth a try.

    So many of the new treatments are targeted towards HER2 positive cancers, that feels like a real positive 

    sending love and hoping things feel a bit better soon. They will get better - side effects can be managed and also you are very early stage in dealing with the shock. I found talking it through with the nurses in this helpline, breast cancer now or Macmillan very helpful too especially dealing with side effects and managing shock. Also I asked for a referral to a psychologist and he's been great at offering strategies to cope