2ne.

Hi I've just read your post and yes I can relate to your reaction to Paclitaxel chemotherapy drug. I had four Ec ,and was changed to have four paclitaxel chemotherapy sessions. On the first administration of the paclitaxel  chemotherapy, within minutes I experienced shortness of breath,felt extremely hot and was shaking and finding ut difficult to breath. I had only had 2mls of the paxitaxol drug going into my body  so it was stopped.  I was told  I had, had  an alergic reaction, after my body settled down I was able to go home.

They contacted my oncologist, and the next week he called me  to say he wanted to put me in hospital and de sensitive me,meaning administer the paxitaxol very slowly over a number if days,so my body would tolerate it better. I said I wasn't happy to do this,as I'd only had 2mls of the paxitaxol drug go.into me,and I felt so ill,and it was my birthday on the week he wanted me to be in hospital, and I dudnt want to be in hospital on my birthday. I had been tokd by the chemotherapy staff that  there were many differnt taxol drugs,whuch may suit me better.He understood and said OK I will start you on another taxol drug, it begin witu the letter A,I can't remember what it was something like Amataxil, so thats what we did. It wasn't pleasant, but I tolerated it,and was able to have four sessions to complete my chemotherapy.  I then had at a later date 3 weeks of Radiotherapy. 

Hope you can disscuss your options with your oncologist and make the right choices for you and your body. 

Good luck  with everything. 

2ne.

Hi I've just read your post and yes I can relate to your reaction to Paclitaxel chemotherapy drug. I had four Ec ,and was changed to have four paclitaxel chemotherapy sessions. On the first administration of the paclitaxel  chemotherapy, within minutes I experienced shortness of breath,felt extremely hot and was shaking and finding ut difficult to breath. I had only had 2mls of the paxitaxol drug going into my body  so it was stopped.  I was told  I had, had  an alergic reaction, after my body settled down I was able to go home.

They contacted my oncologist, and the next week he called me  to say he wanted to put me in hospital and de sensitive me,meaning administer the paxitaxol very slowly over a number if days,so my body would tolerate it better. I said I wasn't happy to do this,as I'd only had 2mls of the paxitaxol drug go.into me,and I felt so ill,and it was my birthday on the week he wanted me to be in hospital, and I dudnt want to be in hospital on my birthday. I had been tokd by the chemotherapy staff that  there were many differnt taxol drugs,whuch may suit me better.He understood and said OK I will start you on another taxol drug, it begin witu the letter A,I can't remember what it was something like Amataxil, so thats what we did. It wasn't pleasant, but I tolerated it,and was able to have four sessions to complete my chemotherapy.  I then had at a later date 3 weeks of Radiotherapy. 

Hope you can disscuss your options with your oncologist and make the right choices for you and your body. 

Good luck  with everything. 

Hi Jassoscared....yes, that's it....I'm lucky to still be here.   I've got clotting issues and at the moment feel they aren't taking these into account.  Today I've asked they get my notes and scans together for a second opinion.  Spoke to the nurse today and she said 5 months heavy bleeding are "heavy periods" and nothing to do with the breast cancer.  Hmm...TNBC...bleeding that I should be in hospital now....nobody concerned before I get another round of paclitaxel as an inpatient....I can't take the risk right now.

I'll get back to you again if that's ok.  Just heading out away from it for a while.  All the best Jassoscared x