Metastatic breast cancer

Hi i was diagnosed with stage 4 metastatic breast cancer a week ago and still in turmoil i am 55 and never thought this would happen to me. I am staying positive for myself and family so was told it is not curable just can be managed one minute i am ok the next a cloud of grief overcomes me....so treatment plan is taking letrozole i started it a few days ago fingers crossed my tumour shrinks as 5 cm size and also in my Lymph nodes and collarbone.

Much love to all the others out there getting through a cancer disgnosis xx 

  • Hi Paula

    So sorry to hear of your diagnosis and the stress that it is causing you.  Whilst not curable, treatment is so advanced nowadays and there are many people living long and normal lives.  I am currently halfway through chemotherapy for primary breast cancer and so far, the treatment is working well.  There are lots of really supportive groups on Facebook, sometimes it helps to just speak with people in the same/similar position as you.

    sending lots of love xx
     

     

  • Hi many thanks for your reply and positive outlook ... I totally agree with your comments and need to look ahead and like you said treatments are advancing all the time and will always remember that. Hope the chemo is going ok for you and much love with your treatment in the future.

     

    sending love back xxx

  • It is a massive shock, it still blows my mind (diagnosed in October) that it is happening.  Just take one day at a time, don't feel you have to be positive all the time because it is really, really rubbish! Definitely a rollercoaster of emotions but you will get through this, especially once you are on the treatment path and you feel that you are doing something to kick its butt! Xx

  • Hi, I feel for you I too was diagnosed with met breast cancer 4 months ago in bones at 56, had total hip replacement but one in spine which I started medications for, totally out of blue only experiencing pain in hip, but now meds have calmed down and am looking forward to returning to work, (can't wait I feel the need to some sort of normality after feeling world crushed) but when sun shining I'm out walking again and always looking up to the wonders that nature brings, I'm too taking letrazole,  abermaciclib and denosumab although the latter has been suspended due to covid they want to limit time spent in hospitals, I understand your grief though and it's very scary time for you and your nearest and dearest but have faith in your doctors and nurses they will always do the best for you, don't forget treatments nowadays as I been told are so far advanced, but I do believe a positive mind brings positive results just embrace your good days and sleep bad ones, when you having good day bake a cake or buy one like me lol I not a Mary Berry make good food for when you feel an off day, tell people you feeling down but also tell them you feel great today and enjoy a laugh again and a glass of what you fancy x in a few years times we will all saying pfft what was all the fuss about, you never know what cure is just around the corner x god bless ya 

  • Thanks for your lovely positive reply I had a really good day and went out for lunch with a friend, I got diagnosed with breast cancer a month ago and final results and treatment plan last week think I have found it hard coping with my family and friends reactions, I have told everyone I just want to get on with treatment and let's get back to normal texts and conversations instead of "thinking of you and stay positive " all the time lol the letrazole seems to be agreeing with me as 5 days on no side effects I go back to see my oncologist next Thursday so I feel looked after. I have had the same thoughts in a few months returning back to work for some normality and structure in my life as feel ok fingers crossed it continues I have also stopped using Google as scared me to death.

    Wishing you a speedy recovery xxx

  • Hi Paula 

    I hope the treatment is going ok for you. X

  • Hi x

    Everything going to plan had ECG and bloods done every 2 weeks and can carry on with Letrozole and Ribociclib...got scan beginning of April results the 14th fingers crossed it is making a difference to my cancer xx

  • Hiya

    I have just joined the site as I also have metastatic breast cancer and will be receiving the same treatment as you. I've already started on letrozole and in two weeks start Ribobcyclic....terribly shocked but quietly determined to survive as long as possible

    Hoping your results from last year are positive and you are doing well?

  • Hi I too was diagnosed in February. I had breast cancer 13 years ago (aged 33) just after having my daughter. Had chemo, mastectomy (chose bilateral to avoid further cancer) radiotherapy and also chose to have my ovaries removed. However it's back in my right side of chest this time in the lymph nodes. I had thought 13 years on I was getting further away from the likelihood of it returning. The oncologist thinks as I stopped tamoxifen 3 years ago (was on for ten years) that it's just been waiting for a chance to come back. I had a week of feeling so sick with worry (never had a feeling like it before). That was before I saw the oncologist where I was passed to them from breast surgeons who can't help. I had no information for two weeks on what was going to happen. Now I've seen the oncologist and know the plan letrezole and ribociclib I feel a little better. Started the letrezole, start the ribociclib next week. I need to find the inner strength and mindset where I get on with life. I work with children so am unsure how much I can do that on these tablets? Can you go on holiday whilst on ribociclib? 
     

    A huge thank you to all who post, reading others stories makes it feel more reassuring. 
     

  • Hi mine returned after 10:years it's devastating the feeling of it's back but your team will do their best to put you on right path to manage it,  I'm 16 months on from second diagnosis and back to full time work, don't get me wrong I feel it some days but mainly I  chose to work because I like to be busy, you will have bad days but a lot more good days, working with kids will help I'm sure coz they innocent and know nothing apart from the laughter you bring to them, the initial feeling of why has it come back is replaced most part with let's get on with it and beat it, feel good when you can you can, if you feel lost take a break, I love my days off now and holidays much more although I don't travel abroard I'm sure you can travel freely, take regular duvet days and enjoy. It's the little things the can bring you so much joy 

    take care and embrace your life