Have just been diagnosed after many visits to 3 Gynaecologists,  initially treated with hormone replacement pessaries then 2 years later for lichen sclerosus, until small biopsy, mapping in 2 weeks.  Have followed the discussions with interest it's nice to find other people with knowledge of what's to come !!!  Have changed to long skirts, long socks, no nickers etc. etc.  Was so good to read the forum to know not alone, not happy about this being rare as means no research.  Anyone else in Devon with this ?  Not happy as once treatment starts no swimming or cycling, as have osteoarthritis and being in water is such a relief.  I'm retired so will have time for walking.