Hi Sarah,

Hope you and the family are doing ok :)

You must be so nervous with your operation coming up, it all seems like such a long road doesn't it?With your family history have any of them tested positive for the gene? As my mums is related to ovarian cancer she had it but just for the 2 BRCA ones. They've added a third one now apparently. She tested negative but of course theres dads side to consider and the third gene... Im crossing my fingers that I'm just an anomaly! lol 

Changed my appointment to Wednesday now for results as that's my chemo day so was able to combine. Its a 30/40 minute trip each way to hospital so didn't want to be driving backwards and forwards all week :)

Went to wig shop this week actually but it was closed! lol I bought a scarf so I could watch you tube and try and do some fancy headscarf tying. Had a go today and looked like I was about to get on a camel! Had serious Sahara vibes...lol. Wasn't too bad though and I think if i can get the hang of it its a good option for indoors at least.

Had ultrasound on Monday and the lady told me that the lump was responding to treatment and had reduced in size a bit. (was hoping they'd tell me I was a medical miracle and that it was all gone! lol) Oncologist will phone me on Tuesday for pre-chemo chat so he should let me know then if he's happy to carry on with current treatment..

Take care

xx

Morning Kerry,

I am doing ok thanks, getting a little nervous the closer it gets, lots of operations have been cancelled at my hospital (lack of anaesthetists). They have assured me mine will go ahead.

I have just mon - fri to work this week then that's it, I'll miss all the kids.

No one in the family has had the test I'll be the first, the 2 Aunties on my Dads side passed away before testing was ever a thing they passed young, my cousin one of my deceased Aunties had bc in her late 30's and ovarian cancer she didn't want the test though as her daughter at the time was only a toddler, her daughter now is 17 and is asking for the test when she is 18, There was also a few others on my Dads side that died of various cancers including bone cancer, such a worry.  
 

 Wow that's a long trip to your hospital mine is a 2 minute drive I can see it from my house, fingers crossed it's just one of things and you don't carry the gene. 
 

You made me chuckle with your head scarf description :laugh it will take some getting used to, I think I would look odd too at least it's nearly nativity season so could blend in at primary school :laugh:

That is such good news that you are getting a response and it's shrunk even a little bit, I'm like you each time I go to the hospital I think they will tell me they made an error,no chance though! 
Hopefully all goes well with your oncologist chat and they carry on shrinking that b@@t@rd lump.

Good luck on Wednesday I'll be thinking about you.

Sarah xx

Hello!

Just realised the date! Not sure how we got so far into November so fast...

I wanted to wish you all the absolute best for your op tomorrow. I hope everything goes well for you!! I'm sure it will!

Now you can start getting to the end of this horrible situation. It's a long slog ahead but you can do it - we can both do it. 

Ill be thinking of you.

Take very good care of yourself and I'm here for a chat always..

xxx

Hi Kerry, 

Lovely to hear from you, I hope you are doing ok and coping with the chemo, how did you get on with your gene testing? Did you get your results? 
I'm all set for tomorrow need to be there for 7:30 luckily it's only round the corner, bag is packed and the house has been scrubbed from top to bottom.

I'll let you know how I get on tomorrow.

take care lovely 

Sarah xx

Not a buddy but just wanted to offer reassurance that my mother had TNBC almost 3 years ago diagnosed via mammogram recall, already stage 3 with 2 quite large tumours and at least 2 lymph nodes affected. She had 6 rounds of chemo first and then a masectomy and lymph node strip. She then had 3 weeks of radiotherapy as there was some disagreement between consultants about whether lymph nodes in her chest may have been affected and they wanted to give her belt and braces treatment.

Yes she felt a bit rough at times but was never bed bound/sofa ridden. She had a rough bout of constipation and a day of feeling incredibly nauseous but laxatives and a change of anti sickness drugs sorted both. Food tasted bland but she didn't really lose any weight and she embraced wearing a funky wig. She had a complete response to the chemo and nearly 3 years on is still cancer free - the risk of it returning is actually lower than other breast cancers once you get past the 2-3 year mark so there are plenty of success stories out there x

Hi Jo.bs

Thats so kind of you to write that, it means a lot. 

I'm so glad your mum is recovered well and still disease free. It's great to hear such good and positive news.

Long may she continue in good health! There's hope for us all... 

Xx

Hi Sarah, 

Thinking of you and hope op went well. 

Thankfully gene testing was all negative (three negatives being a good thing for once!! Lol) 

Take care of yourself 

Xx

Hi Kerry, 

That is great news with the gene testing, such a relief.

Op went as planned, although I ended up staying overnight as they had me in theatre for longer than expected, home next day though.  I have to say it's bloody sore and boob looks like a car crash but job done, results in 2 weeks to see if they have it all and if lymph node was clear. Fingers crossed.  Then I should get my appointment for oncologist.

hope you are doing ok and not feeling too bad with side effects, it's a tough old slog isn't it, but we will get there one day at a time.

Take care lovely.

sarah xx

Hi Jo.bs

Its so lovely when someone pops on to let us all know there are positive outcomes to this hideous disease it really does lift your spirits.

I am so glad your Mum is doing well.

Take care

Sarah xx