I've been offered Letrozole but not sure

Hello everyone

I'm Aileana

In early September I was diagnosed with an IDC estrogen receptive breast cancer , the lesion was picked up at my 4 yearly mammogram.

Things moved very quickly & I had an operation last Friday...wide excision + sentinel node biopsy

I have now had the results. A 5mm cancer was removed from my breast, with a good margin, & my lymph nodes are clear. I feel very, very lucky & hugely relieved. 

Radiotherapy was mentioned & I will have an appointment with the consultant but my oncologist worked out my percentages and I feel I will not have it.

I'm 68 & Letrozole is what I will be given should I choose to have it. I will be given a Dexa scan prior to a consultation about this treatment. I already have mild osteoarthritis in both hips & a small area of osteopenia that showed up in a recent pelvic x-ray.

I have a very low tolerance for drugs, it's in my medical records that should I need any drugs I should be started on a very low dosage to see if my system can tolerate them.

Again my oncologist felt, given the percentages, that I could probably forego this drug.

I don't like what I'm reading about the possible side effects of it & in reading some of the negative experiences people have on it doesn't inspire confidence. I appreciate some people may have a positive experience  but I feel it's probably not for me....however I won't make any decisions until I know more.

I had only just started on HRT (now stopped, for obvious reasons) 6 weeks prior to my diagnosis, mainly for VA which I had previously been using vagifem & estriol cream for. But I also was taking it for the overall benefits it gives.

I also have b12 deficiency which has it's up's & downs but on the whole I manage it pretty well as long as I try & keep my life on an even keel.

The thought of taking a drug that could cause me debilitating symptoms I just feel would be detrimental to my quality of life.

I have a consultation with my medical herbalist next week...I know there are herbs that can be used to suppress estrogen & I'm interested to learn what all is available to me in this respect. She is also great on nutrition and although I feel I already eat healthily ....I shunned red meat & sugar a long time ago.... there's always room for improvement

Has anyone followed an 'alternative' path to Letrozole?

Does anyone have any positive stories with Letrozole?

 

 

 

 

  • Hello Aileana and welcome to the Cancer Chat community.

    I'm really glad the results from your surgery have brought good news and you're making great progress on your cancer journey.

    Letrozole, like many other cancer drugs, can cause some side effects, some of which can be difficult to manage but quite a few of our members have had positive experiences with this drug so hopefully you'll get to hear about them soon. 

    In the meantime, if you would like to talk things through with one of our cancer nurses, they're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m.

    If you are thinking about trying alternative options do be sure to let your oncologist know as they may interfere with any medicines you may currently be taking.

    I hope you're able to get all the information you need soon and are able to come to a decision that's right for you.

    Kind regards,

    Steph, Cancer Chat Moderator

  • Hi Steph, thanks for your reply. Much appreciated