Mycosis fungoides

Having had gradually worsening "eczema" for over 30 years and finally getting my gp to refer me to a dermatologist, I've just had my first phototherapy session.  I've had a biopsy which was inconclusive but showed no malignancy.  The sister in charge of the clinic was shocked that I have barely any normal skin on my body and said she was sure I had MF.  I'm now having 3 sessions a week for 6-10 weeks, which hopefully will finally get my skin under control.  I'm so relieved I'm getting taken seriously after so long.

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    Hi Maxcat,

    A very warm welcome to our forum.

    It sounds as if you have had quite a struggle over the years. I am delighted to hear that you have finally got some answers and that there is no malignancy present.

    I sincerely hope that your photherapy sessions work and give you some relief.

    Kind regards,

    Jolamine xx