The waiting game

I'm so glad I found this forum and now know that waiting for results is difficult for everyone at times I think I'm just a negative person but it seems the waiting game is tough.  I had duct ecstasia around 8 years ago with no reoccurrence.  I recently decided I would get the lump checked behind my left nipple but wasn't concerned as my nipple has been inverted for 8 years and I fully expected to be told it's duct blockage again.  Came as a shock to find that's not likely. .  3 biopsies on lump and one in Lymph node.  Words used like worried and highly suspicious during consultation.  To be honest I'm in shock that awful sick feeling in your tummy and another ten days till results appointment.  I asked some direct questions but obviously she wouldn't commit till results are in but in her experience I will be having treatment. Keeping as busy as I can but an emotional wreck right now. Relieved to hear this is the norm for most of you awaiting results. 

Parents
  • Hiya 

     

    I am new to the forum and I am so worried as well.

    I found a lump on my right breast a couple of days ago and i have an appointment with my gp next Thursday...the waiting game is the hardest ...I cannot stop crying and thinking the worst...it is really hard .

     

    I hope you get some great results .

  • You too it's a worrying  time for sure.  I feel exactly  the same.  My best day this week as so busy at work.  Distraction  seems to be the best thing right now. Hope your results are good too x

  • Hi Madgee,

    I'm doing ok thank you ️ I'm so sorry I've been quiet. I was able to travel back home for Christmas and see my family and I haven't really been in my phone at all. 
     

    Chemo is going ok so far, but the hot flushes and joint pain from the Zoladex are really something else. Currently preparing myself for round 3 of chemo on Wednesday..

    How are you doing hun? I'm so sorry to hear that round 2 was heavier. Was it the nausea that made it more difficult? Have they given you extra anti sickness meds? Have you started round 3 yet or are you also starting next week? I hope it is kinder on you!! 
     

    I can't wait for end of Jan and for us to be halfway through Chemo. We're doing it!! ️

  • Happy New year Madgee and Elvira114, 

     

    So happy to hear that you are both well and coping OK with the chemo. You are both so strong !

    8 am going for another ct scan probably in 2 weeks time and then I will find my treatment for 5 or 10 years .

    A bot scared again starting all the hospital appoints, it felt so good during the holidays being at home with friends and family, not thinking about treatments and hospital waits...

    As you said Elvira114 we will make it . 

    You both ladies are so strong and you halfway

     

    Have a good day ,stay positive.  Sending lots of love to both of you .xxxx

  • Hello ladies Elvira and V1234, 

    So sorry I've been off the grid.  Round 3 of Chemo completed and turned a corner this weekend.  Half way through and the thought of 3 more is daunting but getting there.  Truthfully I've found Chemo hard but also the Omicron situation has made it very isolating and it's something that makes it harder. I would def have a cleaner or enjoy going out on my good week if Covid wasn't around but it is what it is.  

    You have now done 3 Elvira well done we can do those final 3 and I'm certain the rest of the journey will not be as hard as the Chemo is. I change my chemo on round 4 to the Herceptin and a new chemo so will have to see how that goes.  I haven't had joint pain just awful nausea and extreme exhaustion with just a feeling of being really unwell. I hope your coping Elvira and start to turn the corner soon lovely.  Have you got your scan date V1234 and your treatment plan yet? I hope your healing well from your surgery and some normality is creeping back in to your life.  I felt really blesssed that my good week fell over Christmas so I had a really lovely week.  I roll again on 20th Jan when that's done I'm heading to the end of chemo and I will be popping a cork when that happens. 

    it's not an easy journey but we will get there and when we get through this we will be stronger happier people.  Loads of love to you both where all on our way to being healthy and cancer free ️

     

  • Good morning Madgee, 

     

    So good to hear from you and also so happy you have finished the 3 chemo round , you both ladies are so strong ! Amazing !! 

     

    I was thinking about you both yesterday evening . I am having g my CT scan of the chest on Thursday.  Then I am seeing my plastic surgeon next Friday but I have not got any appointments yet for my oncologist. 

    I am so stressed to find out what my treatment will be and if the marker on my breast is there or not . I hope it is not because I just started feeling better from the operation and my scars are looking a bit better . Not feeling very feminine at the moment but hopefully time will help  .

    I will let you know as soon as I fund out what my treatment plan will be ,I am praying it will be next week ,the quicker the better .

    Please keep in touch and stay positive  

    You arr both so strong going through all this .

    Sending lots of love to both of you .

  • Hello lovely,  so please you have healed well.  It's a massive adjustment and I can imagine regaining your confidence is a tough one but when you see your oncologist positive news will help because being cancer free out weighs everything hun.  Keep us updated on your scan results and stay positive. Loads of love  

  • Hi ladies, 

    Its so nice to hear from you! No need to apologise at all, I've been off the grid myself too. 

    I'm glad you've turned a corner after round 3! And yo are right, chemo is hard.. but Covid still being around really makes things a lot more difficult. During a time when you need more support or when you're desperate for a bit of entertaiment when you do feel ok, not being able to do that is so very frustrating. I completely share the feeling with you!

    I had my 3rd chemo last Wednesday and finally feel like I'm back to normal again. The fatigue is definitely getting worse, but so far i've been able to keep the nausea relatively ok with extra anti sickness meds (isnt feeling nauseous just the worst?!). I had some really bad body aches this time round. They always hit me around day 4-5, but this was something else. As of my entire body was severely bruised, lying in bed was so painful. But that too passes luckily! 

    What chemo do you switch to now? I still have one more round of EC left at the end of this month and then I'm at my mid way point. I then switch to Taxol and Herceptin, and Taxol will be weekly chemo for 12 weeks (supposed to be easier as its a lighter dose, but I believe it when I see it haha). I also had a catch up with my oncologist yesterday for examination and to discuss scan dates. Have you heard anything on new scans yet? The good news was that he can not feel the lump anymore (!!), so despite this journey being hard its good to know that it is worth it. 

    I'm so glad you had a good Christmas, try to savor the days/weeks where you do feel good. Like you say, its hard but it will be worth it and we will get through it. And always remember that you're not alone!  ️ 

  • So lovely to hear from you Elvira and that your pushing through it.  I had 3 FEC and my next 3 are dosectaxel and the herceotin.  I've asked if it's easier they said less toxic but more side effects. I hate the nausea but like you haven't been sick as used back up meds.  Constipattion is difficult and no amount of laxatives seem to help.  I haven't had body pain at all just breast and armpit pain.  I felt my lump was a bit bigger so have asked for an ultra sound and waiting for date. It could just be me worrying hun. Can you believe we are half way through, thank goodness.  I know the journey doesn't end after the chemo but if we can get through chemo the rest will be easier.  It's got to be the worst bit. I'm so pleased they can't even feel yr lump that's a massive positive.  Enjoy yr goid days.  Have you been out or shops I haven't and it's getting me down not seeing friends or being able to go inside.  I wondered if I'm being over careful? Let me know how you have managed it love x

  • Ahh yes I've heard that too from Docetaxel, but in all honesty you never really know how you react to it until you get it! I've heard a similar thing about Paclitaxol and risk of neuropathy etc, but I guess we'll just have to wait and see how we go.. At least you have 3 more and you are halfway through now, that makes it so much mroe manageable!! I'm not looking forward to one more EC and then 12 Taxol, seems like a drag but just have to remind myself its for a good cause :)

    Hope you get an ultrasound soon! Like you say it might be nothing, it is so easy to feel everything changing as your body is going through so much but always good to check. I had a similar experience at the beginning of chemo and it turned out to be nothing, just my body reacting to all of the meds they are putting it through! 

    I have been getting out a bit; to shops or go for a walk with a friend. I've had a conversation with my BCN about it and she said to be cautious (dont go to crowded places, or see people that have lots of interaction) but to try to do certain things to keep spirits up. And they recommended to wear a FFP2 mask as gives extra protection. Not sure if that helps? I think as long as you're being careful and wash hands/disinfect etc you hopefully are able to at least do some things!! 

  • Hi lovely really feel for you on the body aches I've hardly had any touch wood. Had scan today they where pleased.  I was 1.5 to 2 and now 1.3 so only a little but going in the right direction.  They said it's the herceptin which targets the cancer and that's what will zap it.  Onwards and upwards next Thursday is d day on the new treatment and I'm going 3 weekly still.  Enjoy your good days Elvia.  Hope both you girls have a great weekend ️

Reply
  • Hi lovely really feel for you on the body aches I've hardly had any touch wood. Had scan today they where pleased.  I was 1.5 to 2 and now 1.3 so only a little but going in the right direction.  They said it's the herceptin which targets the cancer and that's what will zap it.  Onwards and upwards next Thursday is d day on the new treatment and I'm going 3 weekly still.  Enjoy your good days Elvia.  Hope both you girls have a great weekend ️

Children
  • Hello lovely ladies,

     

    This is amazing Madgee ,I am so glad that everything went well with tour scan . Great news !

    Good luck with the new round next week ,please let us know how you are. 

    I had my scan yesterday and hopefully I will get a date to discuss the scan results and my treatment.  

    I wish you both a great weekend.  Sending lots of love to both of you xx

  • Great things are moving for you V1234.  We are all getting there slowly but surely.  Let us know when you get your date.   ️

  • Hello V1234

    How are you doing? Hope everything is healing well and your not to limited in what you can do post surgery.  Have you had your scan and discussed any further treatment with oncology team? I do hope you are making progress and scan results positive.  Lots of love xxxxxx

  • Hiya Madgee 

     

    So very nice to hear from you !

     

    I am.ok, I I recovering still from the operation and still off work till mod Feb. I actually had a call from my clinical nurse today to tell me my scan was clear and I do not need another operation.  Also that I do not need chemo for now and at te moment it will be radiotherapy and hormone blockers .

    I have my appointment next week and I am so relieved. 

     

    How are you ? How are the chemo sessions going my dear? 

    I was thinking about you two ladies last week but I wanted to wait till I had some more news from my doctor. 

    8 hope you feel strong and hopefully the chemo will come to end soon !

    Stay strong and positive.  Sending g lots of love and hugs

  • Absolutely  fantastic  news I'm so pleased for you.  Onwards and upwards once yr fully recovered  pop it in a box and enjoy every day hun.  Well done great news xxxxxx