The waiting game

I'm so glad I found this forum and now know that waiting for results is difficult for everyone at times I think I'm just a negative person but it seems the waiting game is tough.  I had duct ecstasia around 8 years ago with no reoccurrence.  I recently decided I would get the lump checked behind my left nipple but wasn't concerned as my nipple has been inverted for 8 years and I fully expected to be told it's duct blockage again.  Came as a shock to find that's not likely. .  3 biopsies on lump and one in Lymph node.  Words used like worried and highly suspicious during consultation.  To be honest I'm in shock that awful sick feeling in your tummy and another ten days till results appointment.  I asked some direct questions but obviously she wouldn't commit till results are in but in her experience I will be having treatment. Keeping as busy as I can but an emotional wreck right now. Relieved to hear this is the norm for most of you awaiting results. 

Parents
  • Hiya 

     

    I am new to the forum and I am so worried as well.

    I found a lump on my right breast a couple of days ago and i have an appointment with my gp next Thursday...the waiting game is the hardest ...I cannot stop crying and thinking the worst...it is really hard .

     

    I hope you get some great results .

  • You too it's a worrying  time for sure.  I feel exactly  the same.  My best day this week as so busy at work.  Distraction  seems to be the best thing right now. Hope your results are good too x

  • I'm so glad you had a lovely time!! You sound very well prepared and I'm convinced you got this lady. The countdown can begin now, and exactly like you said it's not forever!

    my update.. ive finished my fertility treatment this week (went well they got quite some eggs out ️) and had my port placed in my arm on Thursday. I didn't even knew that was possible, I thought they always went in your chest!
    I start Zoladex tomorrow (for ovarian suppression to give me better chances at keeping fertility after chemo). I've spoken to my oncologist a few times as I've been concerned about changes in my breast but he thinks it's mainly driven by the hormones I've been taking for fertility, so I'm trying my best to keep calm until I start chemo on the 22nd. 
     

    I'm starting with EC and then moving on to paclitaxel and herceptin. They've given me a lot to read but the nurses were lovely! Feel very happy they've given me a 24hr line to call in case I need them. It's nice to know they're people ready to help you.
     

    All in all.. im doing ok ️ My brother was over this week from back home (im Dutch originally) and that was a great distraction. Now im ready to kick cancers butt!! 
     

    Let us know how you get on. Sending love xxx

  • Oh wonderful lots of eggs is great my friend doing IVF at min.  I'm so pleased you caught up with yr brother too.  Yes the support is just incredible you will kick it's butt for sure and before you know it you will be cooking those eggs and looking at prams.  Stay strong lovely lots to look forward to after this journey  for us all

  • Hi both,

     

    So.good to hear from both of you and how well prepared you both are.

    So good to hear Madgee about you new hair . I am sure you look beautiful! You are so organised as well ...I am so the opposite at the moment I am usually so organised and always want to know what I am doing but now ...I am still waiting for the " fish request " ..I am hoping that I will find out more details this week.

    Elvira114 I am so so happy for you, such wonderful news about the eggs  

    On the 22nd I suppose to be having my mri scan of my arteries but not sure if this will change this week.

    Please keep in touch ,so good to hear from both of you.

    Have a good night xxxx

  • Hello Elvira114 and V1234 how are you two lovelies?

     

    Just wanted to update you both.  I had my first Chemo yesterday and have to say you have nothing to stress about at all.  I had an hours wait as do busy I met some of the loveliest patients men and women in the waiting area and we all chatted it was so reassuring and got lots of tips.  I then went for my treatment and the nurse administrating the chemo was fabulous.  Mine was put in to a cannula  slowly thru syringe not sure everyone's is done like this.  Mine took an hour and we chatted the whole time she was lovely.  I did not feel stressed at any point so please don't worry. I did feel unwell this morning but have improved as day gone on but don't want to say to much as think I might feel a bit more rubbish tomorrow.  I had to go back for heart scan today and didn't feel up to it really but all went fine and spent afternoon on sofa.  I had a fresh soup with bread for tea and enjoyed it, not my normal appetite.  Just know how worried you will be and you don't need to be.  It was quite a nice social experience.  Here if u need to ask anything stay strong and don't worry girls we are going to get through this ️ ️ ️ ️

  • Hi Madgee,

     

    So good to hear from you and so so happy everything went well!

    Reading your message it really gave me so much strength that I can do this ...I can face it . Thank you so much   

    I hope tomorrow is a better day for you my dear.

    I definitely will have lots of questions when I fund out when mu treatment will start...

    Elvira114, I hope you are well too my lovely. 

    I wish you both have a good night , rest well. Xx

  • Hello lovelies,

    Madgee thank you so much for your reassuring message! I'm not going to lie, with chemo coming up on Monday I am really anxious at the moment but your message really helped!!

    I hope you're still feeling relatively ok and that the side effects are manageable! 
     

    V1234 - I know your MRI scan is coming up too, I'll be thinking of you. Hope you're doing ok at the moment?

    Stay strong ladies ️

  • Hi lovely ladies!

    I hope you are both well. 

    I am thinking both of you. I am always so happy to see a message that I have an email from ine if you great ladies.

    My mri is on Monday morning, I am a bit scared but it needs to be done !

    I did have a call yesterday from one ofvthe nurses to let me know that my operation is on the 9th of December..I am terrified but again there is nothing I can do ...unfortunately!

    I am still waiting for the fish request test and hopefully I will know by tomorrow, if I need chemo myself maybe after the operation...I am still a bit confused as I thought I will have my chemo,if needed ,before my operation but I will wait and see wht the Dr will day tomorrow. 

    I am thinking of both of you . 

    We will make it ! 

    Good luck for Monday Elvira114

    Stay strong night night xx 

  • Hi lovely,

    I'm so glad you know when your operation will be, and 9th of Dec is quite soon so looks like they are all over it! Have you already discussed the operation? Will it be a lumpectomy? 
     

    Have you meanwhile heard news about the fish test? Hopefully that will give you some more news on the specifics. From my understanding they usually give chemo before surgery either when the tumor is quite large/ you have lymph node involvement, or when you are HER2 positive. I hope for you it's not necessary!

    Keep us posted please ️ 

  • Hi Elvira114 & Madgee,

     

    I am pleased that he operation is so close ...hopefully I will be OK for Christmas,at home with my family!

    I am having a masectomy and a reconstruction at the same time so I am a bit terrified, even if I have discussed everything with the 2 doctors. 

    The fish request is negative, so no chemo at the start but there might be after the operation. 

    I am getting my mri next week and then my pre assessment the week after. 

    I wish you Elvira114 good luck for Monday my dear

    Madgee ,I hope you are feeling OK after ypu first chemo and you have a nice ,relaxing weekend

    Have a lovely afternoon.  Be strong ,we will make it, we will beat this horrible disease. 

    Sending lots of love to both of you  

    Xxxxx

  • Sending love to you both today girls.  You will be ok Elvira promise I will be in touch with you both soon.  Don't worry lots of water and rest when you get home. Love to you both xxxxx

Reply Children
  • Thanks for your messages lovelies!

    Everything went fine and smooth at the hospital yesterday, the nurses were amazing and made me feel so at ease. Came home and got a headache and became quite nauseous but after a few hours of sleep feeling a bit better this morning :) meds for the side effects are helping at the moment, so just trying to drink loads and rest! 
     

    Hope you're still doing ok Madgee! And V1234 that your MRI went ok! 
     

    We got this ladies ️

  • Fabulous  i knew you would be OK love.  Don't over do it.  Keep me posted on how yr getting along  and hope  yr OK V1234 .  Stay strong girls where on our way to getting better

  • So good to hear you are feeling better today . You both are so strong !

    I hope you have  restful evening both.

    Sending lots of hugs and love to both of you xxx

  • Been thinking of you Elvira how are you coping with Chemo hun xxxxx

  • Thinking of you all week Elvira how are you coping with Chemo love? Xxxx

  • Good morning lovely ladies

    How are you both today ?

    I hope you are both well thinking of you both xxxx

  • I'm good  hun had a rough first week after chemo but it does pass and now I'm so much better. How are you hun I know you will be anxious but try to think positive such good news it's just surgery and no chemo you will make a really good recovery and put this behind you very soon.  Hope yr prepping early for Santa' then it's put yr feet up and this Christmas  is all about you

  • Hi Madgee, 

    So good to hear from you . I am so glad this week you feel better and stronger .

    Yes I am feeling a bit anxious and scared ,sometimes for me but mostly fro the people around me waiting for my operation to finish ! 

    All Christmas presents are bought and all wrapped when my hubby and my little girl are at work and school.  Very early this year ,usually I am not that organised. 

    What about you Madgee ,all done ? 

    Looking forward to be out from the hospital, hopefully recovered a bit by the 25th !!

    How are Elvira114 my dear ? I hope you are feeling OK?

    Thinking about you !!

    Sending my love and hugs to both of you xxxxx

     

  • Fab yr all organized V1234 and No I'm not organized at all lol. My son is 29 so it's not the same as when they are young but I just can't wait to spend day with him.  I'm organized in the food front but that's about it.  I'm absolutely sure that you will be definitely enjoying Christmas Day.  Just listen to your body post op and don't over do it that's the secret. With everything that's been thrown at us I think it's the smallest things that will make this Christmas special, the smells, the tree and for you yr daughters face. I don't care if there's nothing under tree but suspect there will be lol.  Stay positive iand your going to be just fine.  Much love xxxxxx

  • Hi lovely ladies,

    Sorry I haven't responded, I've been doing ok ️ My mum is over for a few days from back home to help out, so have been enjoying the company and taking it easy! 
    The first 2 days were tough, I felt relatively ok but I got a pretty bad headache and it kept me bed bound pretty much for 2 days straight. Since yesterday I've started to feel a lot better! I've even managed to put some normal clothes and make up on today (I know it seems silly, but it's the little things that make my day haha). 
     

    I still am not back to a 100%, my body is aching but as much as chemo is hard, I now also know I can do this. I've even got myself a wig this morning! 
     

    Hope you both are doing ok. Madgee - also one more session of chemo before Christmas?? I hope we can all enjoy the holidays, but at least we know we got this ladies. We're strong!! ️