Hiya 

I am new to the forum and I am so worried as well.

I found a lump on my right breast a couple of days ago and i have an appointment with my gp next Thursday...the waiting game is the hardest ...I cannot stop crying and thinking the worst...it is really hard .

I hope you get some great results .

You too it's a worrying  time for sure.  I feel exactly  the same.  My best day this week as so busy at work.  Distraction  seems to be the best thing right now. Hope your results are good too x

Hi Madgee, 

So good to hear from you!!!

I am so happy your PET scan came back good and has not spread into any other organs ! 

I did feel a lot better , after all the sleepless nights and everyday crying, when the Dr actually  told me what the treatment plan will be . It feels like a weight is off my shoulders .

Definitely a better sleep tonight Madgee and Elvira114

Have a lovely night.

Sending lots of love to both of you.  Keep strong and positive!

Please keep in touch xxxx

Sleep tight ♥

I'm so so pleased your scan came back clear!! I also had some spread to the lymph nodes in my armpit (I think 3 are affected) but that happens quite often apparently. Never fun to hear but like you said, the best news is no spread! It felt like I already won half the battle when I heard, so I hope you also felt a bit better after!

I completely agree with you that at least knowing all the facts relieves some of the anxiety, It think it allows you to go into fight mode. Now you know what you're dealing with, they have a plan. And yes it will be hard, but we can do this.

Do you already know when you'll start chemo? They've given me the exact same treatment, and because I'm currently going through IVF I'm scheduled to start chemo on the 22nd. I also got told yesterday that the cyst they found was indeed a cyst, the CA125 levels in my blood were normal, so no change to treatment and we still go full steam ahead :)

I hope both yourself and V1234 were able to sleep ok. Remember we got this ladies ♥

So pleased the Cyst is a Cyst another box ticked bless you.  I'm just back from the oncologist but no date yet.  He said if I haven't heard from cancer team in next 48 hours to call them.  He expects me to start within one to two weeks.  He explained that I will have two types of chemo first 3,called Fec then the next three will be a different chemo with herceptin. I have left with piles of paperwork to read but I'd much rather be reading homes and gardens lol. I'm also waiting for heart scan date and had to do bloods.  There's something comforting knowing you two are going through the same thing as I've felt quite alone at times.  We can do this let's get ready for the start and look forward to a years time when hopefully we can put it behind us.  Take care girls ️️

It looks like they're all over it and good to know you should be starting soon! I think they've told me the same regarding 2 types of chemo and herceptin, but I think so far they've only told me I'll be getting EC and not FEC (I wonder why... I might ask my oncologist next time!).

What type of material have they given you to read? Do you know if you'll be given a port or PICC line to give chemo through? Sorry for all the questions, trying to prepare myself as much as possible for whats about to come :)

And I know you know this, but just in case you need to hear this again. You are not alone and we will get through this. We're here when you need us!! 

Hi Elvira.  They haven't mentioned  pic line and there was a few questions  I forgot to ask tbh. He talked a lot about avoiding infections colds etc along with the dreaded covid but I have had covid and am double jabbed but to early for my booster.  The big thing I asked was if all goes as it should and no big hiccups at the end of all treatment  are they looking at me being in remission or cured and he said we are aiming for cured which is the goal we all need to be going for.  I am just back from wig fitting as want it all in place so have picked  a wig and also bought a couple of soft cotton pull on bandana type hats and she showed me how to dress the plain one with a scarf she was so lovely.  I wanted her to help me choose while I still had hair don't want that job when I haven't.  I'm not going for the cold cap to try and save my hair as its very fine and I don't think I would have had much success. Not sure what yr plans are but If you need a wig I'd look at that now. I should have start date in next 48 hours. Sending love to you it's a year just one year with the best care and best treatment, we've got this . 

Hi Madgee and Elvira114, 

I hope you both are well .  

I feel tired today ,I think it is all te stress all these weeks!!

Tomorrow I have an appointment with the plastic surgeon about the masectomy and reconstruction.  I hope he will give me all the advice I need so I can make a decision.  I think I will go with using my own tissue but I know it is going to be painful!

Are you both have any advice for me please? 

So much information, I think my brain is going to explode ..

I wish you both to have a lovely evening..rest well .

Keep in touch please. 

We got this

Bless you  not sure of yr age but I am 59 so reconstruction  not on my priority list but irrelevant  of age if your appearance  is very important I totally get it because it's very important to have some normality to look forward to and to be the You you want to be when it's all over.  Just research but go for what's right for you  hunn it's so important  you  get thru this and are comfortable with how you look st the end of it all.  Sorry I'm not much help hun x

Hi Madgee, 

I had no idea about the reconstruction but the Dr mentioned it during the discussion yesterday.  I am 45 years old . I  am not really sure what I will go for , I just want everything to finish and kill this horrible disease!

I  hope u have a good night xxxx

Hi V1234, 

I think it's completely normal to feel tired, the stress is exhausting! I hope you still managed to get some sleep?

I've had a brief conversation with my surgeon, she will do the mastectomy and node clearance and if possible a reconstruction straight away. We haven't discussed it in detail yet as I need to get through chemo first, but in an ideal world, I would do it from my own tissue because for some reason it makes it feel more like 'me'. But if not possible, it's not the end of the world personally either. This is super personal though, you need to do whatever you feel comfortable with. Maybe discuss all the options with your surgeon and they might be able to advise you best :)

But I agree on wanting evertyhing to finish and beat this things butt!! 

Madgee I hope you have heard some more news on next steps and went to start treatment. Great shout on the wig shopping.. I've been contemplating on using a cold cap, but have had so much hair loss already from the stress (ironic isnt it) that I'm not sure if making myself more uncomfortable during chemo is worth it. Did you go to a special store? Not even sure where to start!

Sending love to you both xxx

Hi V1234, 

I think it's completely normal to feel tired, the stress is exhausting! I hope you still managed to get some sleep?

I've had a brief conversation with my surgeon, she will do the mastectomy and node clearance and if possible a reconstruction straight away. We haven't discussed it in detail yet as I need to get through chemo first, but in an ideal world, I would do it from my own tissue because for some reason it makes it feel more like 'me'. But if not possible, it's not the end of the world personally either. This is super personal though, you need to do whatever you feel comfortable with. Maybe discuss all the options with your surgeon and they might be able to advise you best :)

But I agree on wanting evertyhing to finish and beat this things butt!! 

Madgee I hope you have heard some more news on next steps and went to start treatment. Great shout on the wig shopping.. I've been contemplating on using a cold cap, but have had so much hair loss already from the stress (ironic isnt it) that I'm not sure if making myself more uncomfortable during chemo is worth it. Did you go to a special store? Not even sure where to start!

Sending love to you both xxx

Hi Girls got my date start next Monday just want to crack on now.  Sadly couldn't squeeze my covid booster jab in. My wig lady was lovely and it's really quite nice but need my hairdresser to trim the fringe. I also bought some bandanna type hats and i plan to get a cheaper wig for walks in the winter in case it gets wet. I'm spending the weekend with my best pals at a cottage obviously  all being well they healthy  and all doing lateral flows think that will be great for my mental health and a fab distraction.  Hope you both coping  and ready to rid of this disease so you can move on and enjoy everything  once again.   It won't beat us.  Love to you both we got this xxxx