The waiting game

I'm so glad I found this forum and now know that waiting for results is difficult for everyone at times I think I'm just a negative person but it seems the waiting game is tough.  I had duct ecstasia around 8 years ago with no reoccurrence.  I recently decided I would get the lump checked behind my left nipple but wasn't concerned as my nipple has been inverted for 8 years and I fully expected to be told it's duct blockage again.  Came as a shock to find that's not likely. .  3 biopsies on lump and one in Lymph node.  Words used like worried and highly suspicious during consultation.  To be honest I'm in shock that awful sick feeling in your tummy and another ten days till results appointment.  I asked some direct questions but obviously she wouldn't commit till results are in but in her experience I will be having treatment. Keeping as busy as I can but an emotional wreck right now. Relieved to hear this is the norm for most of you awaiting results. 

  • I'm glad I can be of some sort of help :) 

    I'm hanging in there, I have received the results from my CT, MRI and PET scan and they have come back clear so very happy to know they couldn't find any spread!

    I started IVF treatment on Friday so we can do embryo freezing before I start chemo, so it's just a bit full on currently. A lot of heavy conversations with the hubby, but we're both really happy they've sent us to a fertility clinic so quickly so if I do get infertile from chemo, we have a back up plan :)

    But while I had my ultrasound they found something on my ovary, they think it's a cyst but had to do more bloodtests etc to confirm it's not also cancer. My oncologist doesn't seem to be worried since all my scans came back clear, but still something I could've done without at this point!!

    I just really want to get started with treatment at this point, I'm ready to go into battle mode and just really hoping I've had my share of bad news for now! 

    Hoping Wednesday brings us both some good news xxx

  • Wanted to let you know I was thinking of you. I had all my fingers and toes crossed for your appointment today and that you would get ok news. 

    No pressure to update us if you don't to, but please know that either way we are here for you xxx

  • I hope you received some good news today regarding your scans, and some clarity on dates for treatment?

    Thinking of you, sending hugs! xxx

  • Hi Elvira114 

     

    Sorry for the late reply ...i think all the information started sinking in...

    So I have breast cancer ,at the moment stage 1 , waiting for the 2nd tumor the results for HER2..hopefully back in a week's time. 

    If it is also negative I will have no chemo and only  mastectomy, reconstruction and hormone therapy. If it comes positive then chemo first and then all the rest ...

    I feel scared but relived now that I know in a way what is happening.  The Dr said that hopefully I will finish with the operation before Christmas but not for definite yet..

    At least I will be able to sleep a bit better tonight ..I haven't had a good night sleep for weeks .

    How are you ? Have u heard anything or started treatment?  I am sos sorry if you mentioned it earlier but my brain was scrambled these last few weeks.

    Thank you so so much for thinking about me ,you are so kind .

    I know we will make it ! We are strong .

    I hope you have a lovely evening.  Please keep in touch .

    Sending love to you xxxx

  • Hello lovely ladies I had my results today my pet scan good but have some spread in armpit so treatment starts in a couple of weeks  and following chemo breast surgery and armpit surgery and lymph removal followed by radio and herceptin for rest of year.  This is by no means a walk in the park but the relief that it's not spread into organs or bones is immense.  It feels scary but do able and I too will sleep well tonight.  I feel full of hope and optimism.  I know that's easy said with the journey ahead but there's something about knowing everything that gives control back to your life.  Sending loads of love and positive vibes to you Elvira114 and V1234.  We can do this.  Please keep me updated.  Xxxxx

  • Hi Madgee, 

    So good to hear from you!!!

    I am so happy your PET scan came back good and has not spread into any other organs ! 

    I did feel a lot better , after all the sleepless nights and everyday crying, when the Dr actually  told me what the treatment plan will be . It feels like a weight is off my shoulders .

    Definitely a better sleep tonight Madgee and Elvira114

    Have a lovely night.

    Sending lots of love to both of you.  Keep strong and positive!

    Please keep in touch xxxx

     

     

  • I'm so so pleased your scan came back clear!! I also had some spread to the lymph nodes in my armpit (I think 3 are affected) but that happens quite often apparently. Never fun to hear but like you said, the best news is no spread! It felt like I already won half the battle when I heard, so I hope you also felt a bit better after!

    I completely agree with you that at least knowing all the facts relieves some of the anxiety, It think it allows you to go into fight mode. Now you know what you're dealing with, they have a plan. And yes it will be hard, but we can do this.

    Do you already know when you'll start chemo? They've given me the exact same treatment, and because I'm currently going through IVF I'm scheduled to start chemo on the 22nd. I also got told yesterday that the cyst they found was indeed a cyst, the CA125 levels in my blood were normal, so no change to treatment and we still go full steam ahead :)

    I hope both yourself and V1234 were able to sleep ok. Remember we got this ladies ♥

  • So pleased the Cyst is a Cyst another box ticked bless you.  I'm just back from the oncologist but no date yet.  He said if I haven't heard from cancer team in next 48 hours to call them.  He expects me to start within one to two weeks.  He explained that I will have two types of chemo first 3,called Fec then the next three will be a different chemo with herceptin. I have left with piles of paperwork to read but I'd much rather be reading homes and gardens lol. I'm also waiting for heart scan date and had to do bloods.  There's something comforting knowing you two are going through the same thing as I've felt quite alone at times.  We can do this let's get ready for the start and look forward to a years time when hopefully we can put it behind us.  Take care girls ️️

  • It looks like they're all over it and good to know you should be starting soon! I think they've told me the same regarding 2 types of chemo and herceptin, but I think so far they've only told me I'll be getting EC and not FEC (I wonder why... I might ask my oncologist next time!).

    What type of material have they given you to read? Do you know if you'll be given a port or PICC line to give chemo through? Sorry for all the questions, trying to prepare myself as much as possible for whats about to come :)

    And I know you know this, but just in case you need to hear this again. You are not alone and we will get through this. We're here when you need us!!