The waiting game

I'm so glad I found this forum and now know that waiting for results is difficult for everyone at times I think I'm just a negative person but it seems the waiting game is tough.  I had duct ecstasia around 8 years ago with no reoccurrence.  I recently decided I would get the lump checked behind my left nipple but wasn't concerned as my nipple has been inverted for 8 years and I fully expected to be told it's duct blockage again.  Came as a shock to find that's not likely. .  3 biopsies on lump and one in Lymph node.  Words used like worried and highly suspicious during consultation.  To be honest I'm in shock that awful sick feeling in your tummy and another ten days till results appointment.  I asked some direct questions but obviously she wouldn't commit till results are in but in her experience I will be having treatment. Keeping as busy as I can but an emotional wreck right now. Relieved to hear this is the norm for most of you awaiting results. 

Parents
  • Hiya 

     

    I am new to the forum and I am so worried as well.

    I found a lump on my right breast a couple of days ago and i have an appointment with my gp next Thursday...the waiting game is the hardest ...I cannot stop crying and thinking the worst...it is really hard .

     

    I hope you get some great results .

  • You too it's a worrying  time for sure.  I feel exactly  the same.  My best day this week as so busy at work.  Distraction  seems to be the best thing right now. Hope your results are good too x

  • Bless you stay positive hun.  I think we have identical diagnosis and my treatment  plan the same apart from they haven't mentioned  radiotherapy.  They also told me the Herceptin  directly targets the cancer cells and the combination  or that and chemo has amazing  results. Yes the wait is really tough and as I am 59 I'm fretting that all those little aches and pains I've had are not just getting older but realistically they probably are, it's hard to stop your thoughts running away with you.  We can do this and you are young and presumably  otherwise healthy so dont let it crush your future dreams, I won't allow it to do that. Hope IVF goes OK and will let you  know when I get my date. Holding your hand in my heart keep in touch xxxx

  • Yes they told me the same about chemo and herceptin! And I completely understand what you mean with little aches and pains, for some reason everytime I have as scan I all of a sudden feel pain everywhere. But exactly like you say don't let your thoughts run away with you.

    I'm not sure if this helps you, but one of the nurses recommended this to me - I currently allow myself to think and worry about scan results etc twice a day for about 15-20 min, and then I try to park it for the rest of the day. Because I have 'worry-time' it helps me focus on other things the rest of the day. 

    I hope Wednesday brings you some clarity (I also have scan results Monday and Wednesday, so I'll be thinking of you) and that you'll know when you can start treatment! So many things are changing, but exactly like you said - it's a year, we can do this and we will come out stronger. 

    Sending positive thoughts and hugs!! xxx

  • Hi Elvira114, 

     

    You are so kind . How are you ? All OK with your treatment?

     

    It has been a nightmare really.  I went on Wed to the breast clinic and the oncologist told me that he was not concerned. 

    I did mammogram, oultrasound and biopsy . They found 2 small lumps in the right breat that seem to be as tge radiologist said lesions.

     They seem solid and have irregular shape. 

    I was so co fused and terrified when he told me . The nurse was in the room and gave me her card for any questions. 

    I could not believe it that in less than an hour my worls change so drastically!!

    I was shaking!! I did not know if ot was all just a bad dream...

     

    I have  an appointment on Wed to discuss the results and discuss a plan .

    I don't know what to do. The doctor told me that he was surprised about the lumps as one of them he did not feel it .

    I just need to wait till Wed and find out my fate ..

    I hope you are having a nice Sunday afternoon. 

    I am taking my little girl and her friend trick or treating, even if I don't feel like it at all, but a nice walk will do me good.

    I will let you know what will happen in my appointment next week.

    Please keep in touch .xxxx

     

     

  • Oh bless you, It does feel like the world is upside down as soon as they confirm they found something. I reacted exactly like you, I ended up shaking like crazy on the table when they did my ultrasound and biopsy. 

    I know this is easier said than done, but try not to worry too much until you have all of the details. Will they give you the results of the biopsy on Wednesday or have you already had those too? 
    Taking your girl out trick or treating sounds like a great idea, get some fresh air and distraction. 
     

    Please keep us posted, know that we are all here for you xxx

  • Hi Elvira114, 

     

    You are such a wonderful person ! I was so terrified, I couldn't stop shaking when they were doing the biopsy, my mind was racing !!

    I haven't had any results yet but tye radiologist was saying that she thinks they are suspicious lesions ,both solid.

    The oncologist was a bit surprised at the end but he said that we will discuss the biopsy results on Wednesday...

    I did ask him if it is cancer then what will happen??  He said maybe operation and maybe treatment afterwards..

    I was so confused when neither him or the GP felt anything during the breast examination.

    Going trick or treating was good . So happy to see my little girl so happy with her friends.  They were planning what they were going to do next year for Halloween..this when it hit me and I started crying without them seeing me ..thinking..will I be here next year ?? 

    Have a good night and please keep in touch it's so lovely speaking to you .xxxxx

  • The not knowing what it is and waiting for biopsy and scan results is the most horrible part of it all in all honesty. I think Jemimah said it in an earlier post as well, but as soon as you know what you're dealing with, a lot of the anxiety will go. Its the not knowing that drives us all mad :)

    The most important part is that you went and had it checked out! Try not to think too much about what ifs until you have some answers, although I'm aware that this is so so difficult. I'm happy that trick or treating at least took your mind off of things, even if it's just for a little bit!

    And if it is what you fear - please remember that they have so many treatments for breast cancer these days and you have a team of professionals behind you, who will help you every step of the way (and we will as well!). 

    I'll have all my fingers and toes crossed for you for Wednesday xxx

  • Thank you so much Elvira114  

    You so caring and do strong . I do get lots of confidence from you advice, thank you. 

     

    How are you ? How are you feeling? 

    Sending lots of virtual hugs xxxxx

  • I'm glad I can be of some sort of help :) 

    I'm hanging in there, I have received the results from my CT, MRI and PET scan and they have come back clear so very happy to know they couldn't find any spread!

    I started IVF treatment on Friday so we can do embryo freezing before I start chemo, so it's just a bit full on currently. A lot of heavy conversations with the hubby, but we're both really happy they've sent us to a fertility clinic so quickly so if I do get infertile from chemo, we have a back up plan :)

    But while I had my ultrasound they found something on my ovary, they think it's a cyst but had to do more bloodtests etc to confirm it's not also cancer. My oncologist doesn't seem to be worried since all my scans came back clear, but still something I could've done without at this point!!

    I just really want to get started with treatment at this point, I'm ready to go into battle mode and just really hoping I've had my share of bad news for now! 

    Hoping Wednesday brings us both some good news xxx

  • Wanted to let you know I was thinking of you. I had all my fingers and toes crossed for your appointment today and that you would get ok news. 

    No pressure to update us if you don't to, but please know that either way we are here for you xxx

  • I hope you received some good news today regarding your scans, and some clarity on dates for treatment?

    Thinking of you, sending hugs! xxx

Reply Children
  • Hi Elvira114 

     

    Sorry for the late reply ...i think all the information started sinking in...

    So I have breast cancer ,at the moment stage 1 , waiting for the 2nd tumor the results for HER2..hopefully back in a week's time. 

    If it is also negative I will have no chemo and only  mastectomy, reconstruction and hormone therapy. If it comes positive then chemo first and then all the rest ...

    I feel scared but relived now that I know in a way what is happening.  The Dr said that hopefully I will finish with the operation before Christmas but not for definite yet..

    At least I will be able to sleep a bit better tonight ..I haven't had a good night sleep for weeks .

    How are you ? Have u heard anything or started treatment?  I am sos sorry if you mentioned it earlier but my brain was scrambled these last few weeks.

    Thank you so so much for thinking about me ,you are so kind .

    I know we will make it ! We are strong .

    I hope you have a lovely evening.  Please keep in touch .

    Sending love to you xxxx

  • Hello lovely ladies I had my results today my pet scan good but have some spread in armpit so treatment starts in a couple of weeks  and following chemo breast surgery and armpit surgery and lymph removal followed by radio and herceptin for rest of year.  This is by no means a walk in the park but the relief that it's not spread into organs or bones is immense.  It feels scary but do able and I too will sleep well tonight.  I feel full of hope and optimism.  I know that's easy said with the journey ahead but there's something about knowing everything that gives control back to your life.  Sending loads of love and positive vibes to you Elvira114 and V1234.  We can do this.  Please keep me updated.  Xxxxx

  • Hi Madgee, 

    So good to hear from you!!!

    I am so happy your PET scan came back good and has not spread into any other organs ! 

    I did feel a lot better , after all the sleepless nights and everyday crying, when the Dr actually  told me what the treatment plan will be . It feels like a weight is off my shoulders .

    Definitely a better sleep tonight Madgee and Elvira114

    Have a lovely night.

    Sending lots of love to both of you.  Keep strong and positive!

    Please keep in touch xxxx

     

     

  • I'm so so pleased your scan came back clear!! I also had some spread to the lymph nodes in my armpit (I think 3 are affected) but that happens quite often apparently. Never fun to hear but like you said, the best news is no spread! It felt like I already won half the battle when I heard, so I hope you also felt a bit better after!

    I completely agree with you that at least knowing all the facts relieves some of the anxiety, It think it allows you to go into fight mode. Now you know what you're dealing with, they have a plan. And yes it will be hard, but we can do this.

    Do you already know when you'll start chemo? They've given me the exact same treatment, and because I'm currently going through IVF I'm scheduled to start chemo on the 22nd. I also got told yesterday that the cyst they found was indeed a cyst, the CA125 levels in my blood were normal, so no change to treatment and we still go full steam ahead :)

    I hope both yourself and V1234 were able to sleep ok. Remember we got this ladies ♥

  • So pleased the Cyst is a Cyst another box ticked bless you.  I'm just back from the oncologist but no date yet.  He said if I haven't heard from cancer team in next 48 hours to call them.  He expects me to start within one to two weeks.  He explained that I will have two types of chemo first 3,called Fec then the next three will be a different chemo with herceptin. I have left with piles of paperwork to read but I'd much rather be reading homes and gardens lol. I'm also waiting for heart scan date and had to do bloods.  There's something comforting knowing you two are going through the same thing as I've felt quite alone at times.  We can do this let's get ready for the start and look forward to a years time when hopefully we can put it behind us.  Take care girls ️️

  • It looks like they're all over it and good to know you should be starting soon! I think they've told me the same regarding 2 types of chemo and herceptin, but I think so far they've only told me I'll be getting EC and not FEC (I wonder why... I might ask my oncologist next time!).

    What type of material have they given you to read? Do you know if you'll be given a port or PICC line to give chemo through? Sorry for all the questions, trying to prepare myself as much as possible for whats about to come :)

    And I know you know this, but just in case you need to hear this again. You are not alone and we will get through this. We're here when you need us!! 

  • Hi Elvira.  They haven't mentioned  pic line and there was a few questions  I forgot to ask tbh. He talked a lot about avoiding infections colds etc along with the dreaded covid but I have had covid and am double jabbed but to early for my booster.  The big thing I asked was if all goes as it should and no big hiccups at the end of all treatment  are they looking at me being in remission or cured and he said we are aiming for cured which is the goal we all need to be going for.  I am just back from wig fitting as want it all in place so have picked  a wig and also bought a couple of soft cotton pull on bandana type hats and she showed me how to dress the plain one with a scarf she was so lovely.  I wanted her to help me choose while I still had hair don't want that job when I haven't.  I'm not going for the cold cap to try and save my hair as its very fine and I don't think I would have had much success. Not sure what yr plans are but If you need a wig I'd look at that now. I should have start date in next 48 hours. Sending love to you it's a year just one year with the best care and best treatment, we've got this . 

  • Hi Madgee and Elvira114, 

     

    I hope you both are well .  

    I feel tired today ,I think it is all te stress all these weeks!!

    Tomorrow I have an appointment with the plastic surgeon about the masectomy and reconstruction.  I hope he will give me all the advice I need so I can make a decision.  I think I will go with using my own tissue but I know it is going to be painful!

    Are you both have any advice for me please? 

    So much information, I think my brain is going to explode ..

    I wish you both to have a lovely evening..rest well .

    Keep in touch please. 

    We got this

  • Bless you  not sure of yr age but I am 59 so reconstruction  not on my priority list but irrelevant  of age if your appearance  is very important I totally get it because it's very important to have some normality to look forward to and to be the You you want to be when it's all over.  Just research but go for what's right for you  hunn it's so important  you  get thru this and are comfortable with how you look st the end of it all.  Sorry I'm not much help hun x