Ileostomy reversal - think I've made the wrong decision

Hi everyone.  I'm 40 year's old and Back in January 2020 I was diagnosed with rectal cancer. Had operation in March of 2020 to have the cancer cut out and ileostomy fitted . The operation didn't quite go to plan . So ended up having another operation to put things right. Had 3 months of chemotherapy in that year which obviously was not nice at all. Since then I've had two ct scans and thank god I'm now cancer free.  So 18 months after having my ileostomy operation I decided to have the operation reversed. I stupidly didn't do much research on this as was told by my surgeon and stoma nurses that the first few weeks I'll probably just have loose stools and will be going to the toilet a little more often than I was before I had my ileostomy operation. It's nearly 2 weeks since I had my reversal operation and I know it's early days but I'm now so depressed and think I've made the worst decision I've ever made in my life . Have people on here expirenced the same situation. 

  • Hello Gooner81

    I'm so sorry to hear that you're struggling following your recent reversal surgery. It's understandable that you're feeling depressed and questioning if you've made the right decision. 

    I know that we've had members post here on the forum before talking about their experiences post-reversal and I hope that they will reply to share their experiences with you. You might also find it helpful to have a look at the information the Bowel and Bladder Community have about reversal as well as their support options

    It really can help to talk with someone at times like this and I'd encourage you to speak with your specialist nurse to let them know what problems you're struggling with. Hopefully, they will be able to offer some advice and information that will help improve things. Alternatively, you're welcome to give our team of nurses a call on 0808 800 4040, Monday to Friday 9 am to 5 pm. I know they'll be happy to listen and offer any support and advice that they can. 

    It is still very early days Gooner81. Try not to look too far ahead and take things a day at a time as this will help with any feelings of anxiety that you're experiencing. 

    Keep in touch and let us know how you get on. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

  • I have just read your letter I had my reversal  after 18 months and I thought my world had ended after the simplicity  of the stoma bag. I was sleeping in the toilet for 2 wks and at the worst going 40 times . But 7 months on there is a 100 % improvement things are nearly normal again you will improve  just give it time there will be ups and downs but your body is amazing  at recovery. My letter tells you more if you want to read it under Ady.