Hi First a little history, Gland up Mar 20, diagnosed July 20.
S4 Base of tongue, lymph nodes & Mets in lungs.
Chemo 1st, 5 rounds, worked initially then stated to grow again.
Nivolumab X2 caused Pnuemonitis, pause.
Then 2x Nivolumab, where I thought it was going ok. Developed a sore mouth, turns out the cancer is now bigger that when we started back in July 20.
Not many options, decotexal 1st & a referral to another hospital.
Completed 2nd docetaxel, but mouth sores terrible & loosing weight. Ng tube fitted but removed after 24 hrs, so uncomfortable.
I feel low, I don't know where to turn & just waiting fur a suitable trial to try & help. Don't think I can continue with the docetaxel anymore.
I haven't been told this is the end , but it does feel like it & I can't shake that. I've never felt lower.
Is there anyway out of this vicious cycle.
