Living with the aftermath is hard sometimes.

Hello everyone,

ive never written or looked at a forum before....surprising really.

 

I was diagnosed with papillary thyroid cancer that had spread into my lymph glands in 1992 when I was 23, with two small boys. The surgery was pretty bad, thyroidectomy and lymph gland  removal and nerve damage was tough, little did I know what was to come. The radiotherapy was tough as I had to stay in isolation for two week periods while getting increasingly tired...when the effects of having no thyroid gland. I never regained all the feeling in my face and neck. I really don't want to sound negative but it's been really tough...getting my levels right and continued fatigue. You live with it and I am alive.

Not cancer related, July 2011 after years of pain and constant bleeding, I was rushed into hospital for an emergency hysterectomy with three blood transfusions. I quickly recovered and I felt amazing, alive...I got a job and was moving forward.

November...I found a lump in my boob...it was quite big and had not been there long. Mammogram...I was sent in to see the doctor and I had multiple lumps in both breasts. When I went in for the results I was told that I had two aggressive malignant tumours in the right breast and I had to start chemo straight away...which I did...during which I made the decision to have a bilateral mastectomy...it was still lumpy, so a worry but also I didn't want to be lopsided...I had big boobs. I wasn't ever given the option of immediate reconstruction but was told of my options. I hospital I was going to is a small one with surgeons, oncologist etc coming in on particular days from the neighbouring big city. I had not seen a plastic surgeon to discuss a plan for post surgery. My general surgeon was so very lovely and I asked no questions, I trusted them. The surgery wasn't bad, I went home the next day, I was going to continue with the herceptin, heal and think about reconstruction later...although I did meet up with the plastic surgeon who top me the pros and cons of implants and the more aggressive making me some boobs out of my stomach...whatever I was told no rush and I was concerned that if I had a recurrence it may not be found if I had boobs...I was going to wait 5yrs. Anyway, I'm boring myself now...so sorry, when I asked if I could be referred back to the plastic dept...I was told that if I didn't have it within 5 years no funding would be available...a new rule?.. obviously I was upset and when I saw one of the plastic surgeons she said I couldn't have implants because of where my scars were....

 

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    Hi IS53,

    A very warm welcome to our forum. It sounds as if you have been through so much in such a short timescale. I know how hard it can be to accept and live with the aftermath of cancer surgery and treatment. I have had 2 bouts of breast cancer in the past 12 years. When first diagnosed, I had a  lumpectomy, but found a second breast cancer in the same breast the following year. This time I too had a double mastectomy.

    I was advised that, because of scar tissue from previous non-cancer related surgery and problems I have with general anaesthetic, that I could not have a reconstruction at the time. However, like you, I was advised that I might be able to have it  in future years. I was told that there would be no time limit, so your 5 year time limit surprises me. To then be told that you couldn't have implants because of where the scar tissue is, must come as a real smack in the face. 

    Have you thought of seeking a second opinion? You are perfectly within your right to ask for this.  You might find it helpful to phone the breast care nures on this forum to see if they can shed any light on this new protocol. They are available Mon - Friday from 9.00am - 5.00pm.

    Do please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx