Pain after taxol

I experienced excrutiating pain after my first cycle of taxol on 2nd August .(also had carboplatin & avastin)The nurses at the clinic were very surprised I had so much pain as they told me patients usually only have some moderate  discomfort.Believe me this was unbearable.No pain killers seemed to touch it .I tried everything.Liquid morphine,oxycodone with paracetamol, hot baths,hot water bottles.GP surgery suggested ibuprofen although I'm not supposed to take it  The pain started in my toes & feet &spread to my ankles,legs &hip joints.It was especially severe at night in bed & as a result I had 3 sleepless nights which just added to my general exhaustion &malaise .I have asked my cancer nurse to contact my oncologist & see if my next dose,can be reduced with affecting the efficacy of the treatment I think the amount I had was just too toxic for my body Anyone else suffered extreme side effects like this?

  • Hey I don't have any answers for you but I am starting taxol ( paclitaxel) tomorrow every week for 12 weeks. My oncologist reassured me that taxol is more bareable than the EC I had for the past 3 months I am now worried this is not true? Hope you are ok x

  • Good luck with your treatment! Everybody reacts differently to chemo & I think I was particularly unlucky to suffer such a reaction.The discomfort has gradually diminished although I'm now taking ibuprofen +paracetamol every 4 hours for muscular/skeletal pain in my right side!!!! Do ask your clinicians for advice about pain relief.I understand that if you have taxol weekly the dose is smaller & therefore the side effects are less.

  • Hi, I'm sorry to hear your going through bad pain

     The main thing I remember with the Taxol and Carboplaitin was pain in my face and top half of my body.. it was the strangest thing if I touched anywhere at the top it hurt like I had been battered or something.

    Having said that it was only ever after the Taxol and Carboplaitin together ( I had Taxol weekly and Carboplaitin added in every 3rd week) and although it did knock me for up to a few days it did get easier and I just tried to think the stronger it is the more it's whacking that horrible Thing in my body. 

    Lots Of love xx 

  • It's a chemo I had along side the Taxol. I had Taxol every week for 12 weeks and then the Carboplaitin added in every 3 weeks. So 4 doses of that over the 12 weeks. I had the EC following that every 2 weeks for 8 weeks. EC was definitely worse for me I think with the nasty side effects .. especially from the Filgrastim injections added in .. they were nasty! X 

  • I have my first lot of taxol tomorrow after 4 x EC I have an injection too every 3 weeks is this what that is? Is it a hormone injection? EC every 2 weeks? I bet that was nasty!! I've had 4 over the past 3 months and it's knocked me i only started feeling better after the 2nd week really i don't think i could have done every 2. Super women xxx

  • Aah I think you just do whatever you can to try and get rid of that Little *** don't you

    filgrastim is an injection I had for a few days after EC to boost your immune cos it can whack it so much. I think the hormone injection you'll be having will be something different but I'm not 100% sure. I didn't have any injections after my Taxol/Carboplaitin but we may have different types..mine was Triple negative so wasn't feeding off any hormones to help it grow 

     

    Hope you get on ok today xx 

  • [@Lizzy79]‍ , good morning, i finished 12 weeks Paclitaxel on 14 th of July and continue Trastuzumab injections every three weeks for one year. My cancer was Her2 positive and Trastuzumab its drug for blocking particularly her2 positive cancer cells. I did not had any big side effects and this drugs was very manageable with very few sides like test in mouth, hair loss, heartburn and low blood count as this chemo every week and not enough time for recovery before second week. You will be in hospital twice a week for blood and covid check and next day for chemo.And first day you will be much longer in hospital as they will observe if you dont have reactions to Trastuzumab then to Paclitaxel. If you have any questions iam very happy to answer. Wish you all the best .x

  • After reading your posts I feel guilty at moaning so much.!You all seem to have been through the mill but have survived somehow!I have metatastic cervical cancer in para aortic lymph nodes &lumbar vertebra..Diagnosed in 2017 after initial treatment in 2011 &was declared cancer free in 2012 & discharged from oncologist in 2016.Treatment is palliative but hoping to keep going a bit longer!My best wishes to you all &"Bon Courage"as my French friend says.

     

  • Hey had my treatment today all went well. So had taxol and an injection which I can now tell you is called phesgo it's a new combination drug which has pertuzumab and trastuzumab went in the top of my thigh and stung quite a lot to start with. Feeling ok at the moment though has anyone else had this phesgo? Hope your all well xxxx