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Glioblastoma IDH WY

Butch66
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Hi 

3weeks ago I was admitted to hospital with headaches and weakness to my left side. 
To cut a long story short I has surgery to remove a large cystic lesion. They removed most of it but could not operate on all of it due to the location. Subsequently told it Glioblastoma WHO GR 4 IDH WT. 

Got my first oncology appointment next week and am unsure on what to expect. Anybody else got any experience of the tumour and any tips on trying to cope with the diagnosis. Any info or advice would be really appreciated whether it be dealing with treatment side effects etc

many thanks in advance 

Parents

  • Good afternoon Butch and welcome to the Cancer Chat community.

    Finding out you have cancer comes with a range of emotions as so many of our members here have found out so I'm sure some of them, and those who have received a glioblastoma diagnosis, will be along soon to offer their support and advice but in the meantime I hope this information will help.

    Our lovely team of cancer nurses are just a phone call away on 0808 800 4040, Monday - Friday between 9a.m - 5p.m if you'd like to talk things through with them but to find out what may happen at your appointment and your diagnosis it may be worth heading over to the Brain Tumour Charity. You can have a look at their website just here.

    Wishing you all the best for next week Butch.

    Kind regards,

    Steph, Cancer Chat Moderator

Reply

  • Good afternoon Butch and welcome to the Cancer Chat community.

    Finding out you have cancer comes with a range of emotions as so many of our members here have found out so I'm sure some of them, and those who have received a glioblastoma diagnosis, will be along soon to offer their support and advice but in the meantime I hope this information will help.

    Our lovely team of cancer nurses are just a phone call away on 0808 800 4040, Monday - Friday between 9a.m - 5p.m if you'd like to talk things through with them but to find out what may happen at your appointment and your diagnosis it may be worth heading over to the Brain Tumour Charity. You can have a look at their website just here.

    Wishing you all the best for next week Butch.

    Kind regards,

    Steph, Cancer Chat Moderator

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