Hi everyone, hoping it is OK to jump on here. I have just been diagnosed with a parotid tumour (this is my third occurance) and I have around 30 tumours wrapped around my facial nerves. Has anyone else experienced similar?
Of course, you're welcome to jump on the forum although obviously, we're sorry to hear that you find yourself dealing with this diagnosis for the third time. It's understandably a difficult time for you.
I'm unsure if we've anyone who has had experience of tumours involving the facial nerve but we do have quite a number of posts where "parotid" is mentioned. If you'd like to have a look through some of them then you can search for the term using the forum search function (magnifying glass in the blue bar at the top of the page). It may be that you also find other similarities and want to post a reply to some of those members.
We do have a team of nurses here at CRUK and if you'd like to chat things through with them you're welcome to give them a call on 0808 800 4040, Monday to Friday 9 am to 5 pm. I'm sure that they'll offer any advice, information and support that they can.
Keep in touch T1nks and let us know how you get on.
Hi there sorry to hear about your diagnosist my mum as been diagnosed with the same but unfortunately hers is terminal it's been 2 months from finding the lump been cancerous to her been laid In a hospice bed dying. Hopefully you've caught yours early and they can help you. Her face looked like she had a stroke and now she cannot eat barely drink and sleeps all the time she is only 57 but was a heavy smoker
