Myeloma

Hi everyone.

I am Kerry, 46, and new on here. I was diagnosed with Myeloma in November 2019, after a routine Diabetes blood test.

I have had 3 MRI's, 3 Skeletal xrays, and 3 Bone marrow biopsies. I haven't started any treatment as yet as my Paraprotein percentage is at 50% at the moment.

I have been experiencing lower back pain and hip pain for about 6 months now, but because nothing is showing up on the MRI's, I haven't started treatment, and I feel like I am going mad, because I know what pain I am feeling, and yet I get asked by Doctors etc if I injured my back at all lately!!!

I take Cocodomol and an anti-imflamatry tablet every day, but it isn't helping much anymore.

Is anyone else in the same situation as me? If so please comment. Anyone with any ideas please also comment.

Thank you in advance

Kerry 

  • Welcome to Cancer Chat Kerry although I'm sorry about your diagnosis and the pain you've been contending with over the last 6 months. It must be very frustrating.

    Hopefully some of our members will offer their thoughts and advice to you soon but in the meantime, if you'd like to talk things through with one of our cancer nurses, they're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m.

    I'm not sure if you've done this already but if you have been thinking about getting a second opinion, you can find out how just here.

    Kind regards,

    Steph, Cancer Chat Moderator