Hello Everyone

I received my prostate cancer diagnosis on the 20th May, T3 Metastatic Prostate Cancer that has spread to my Lungs, Lymph Nodes, hip and spine.

Age 60

Gleason Score 9

PSA 32.2

Classification T3, N1c, M1

Life expectancy 3-5 years

Commenced Degerelix Hormone therapy on the 20th and have my first Oncology meeting on the 9th June to discuss my forthcoming chemotherapy treatment plan.

Prior to the above I had spent the previous 6 months battling what I thought was a severe urinary infection, culminating in 2 blue lighted trips to A&E because I could not no longer pee. 

The upshot of all that is I have a bulbus stricture in my urethra and I now have to self catherterise daily in order to keep the urethra open, and of course the advanced cancer prognosis.

Prior to the degerelix injection, the only chronic pains I had were the separate arthritic pains in and around my right knee and I had just stated taking cbd tablets for that and it has since calmed down, however I now have a similarly chronic pain in my left groin,  which consequently leaves me in shear agony and still alas, hobbling around.

I presume the evil cancer is attacking the Lymph Nodes in and around my groin area, but so strange that it coincides around time of my first Hormone therapy injection.

I would be grateful for any thoughts and feedback on my current pain, it's really quite awful, even with 8 zapain tablets per day.

Many thanks

John

  • Hello JohnPr

    I'm sorry to hear about your diagnosis and that you're struggling with pain management at the moment. It's obviously a difficult time for you. 

    One of the known side effects of Degerelix is joint and muscle pain so it may be that the treatment you're receiving is aggravating things for you. Hopefully, the Oncologist will be able to help with better pain management later this week. 

    As a side note, please do mention to your Consultant about the CBD tablets that you've been taking as they can sometimes have adverse reactions with some medications/treatments. 

    If you'd like to chat with one of our team of nurses ahead of your appointment for some advice and support you're most welcome to give them a call. They're available Monday to Friday 9 am to 5 pm on 0808 800 4040. 

    I hope that your appointment goes well this week and that the team is able to improve things for you ahead of starting any new treatment. 

    Best wishes, 
    Jenn
    Cancer Chat moderator